1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
AVIVA Semi-Finals: National ME/FM Action Network is competing for $100,000
The National ME/FM Action Network in Canada is competing for $100,000 for biomedical research of ME and FM in the Aviva Community Fund contest. With thanks to all who helped, they made it through the first round of voting into the Semi-Finals.
Discuss the article on the Forums.

what is the best description of your me/cfs?

Discussion in 'General Symptoms' started by SaveMe, Apr 21, 2011.

?

what is the best description of your me/cfs?

  1. on & off, relapse-remit, comes and goes

    5 vote(s)
    25.0%
  2. healthy, healthy, BOOM!--> ME/CFS

    13 vote(s)
    65.0%
  3. always had ME/CFS since childhood

    2 vote(s)
    10.0%
  1. SaveMe

    SaveMe *****

    Messages:
    421
    Likes:
    1
    the city
    what is the best description of your me/cfs?
     
  2. SaveMe

    SaveMe *****

    Messages:
    421
    Likes:
    1
    the city
    also, feel free to list a possible trigger(s).
     
  3. Mya Symons

    Mya Symons Mya Symons

    Messages:
    868
    Likes:
    183
    Wyoming
    None of the above fits what happened to me. I had bouts of swollen lymph nodes that would come with mild to moderate feeling of having the flu with fatigue (and head stinging) for several years (since my 20's) These would come and go, but never lasted more than three months. About 11 years ago I had a particularly bad episode and that hit me hard and never went away. Since then, the constant flu and pain symptoms have been with me. Two years after the bad episode, I developed involuntary muscle twitching and neuropathy type pain in my feet and hands. More recently I have circulation problems.

    On my worst days I would describe it my illness like this: Waking up in the morning feeling like I have the worst flu of my life and I am recovering from being hit by a truck at the same time. After those initial feelings hit me, I realize that I am probably going to pass out if I don't lay down again.
     
  4. SaveMe

    SaveMe *****

    Messages:
    421
    Likes:
    1
    the city
    Mya so wouldnt you fall under option #1 titled "on & off, relapse-remit, comes and goes"
    im confused?
     
  5. Leslie

    Leslie

    Messages:
    29
    Likes:
    1
    California
    I think it's the question that makes me hesitate. I do have times of "remission" so to speak, but even during those times I don't feel like I used to before I got sick. If I don't pace myself it is time to pay!! I used to be pretty healthy, and yes, it seemed like all of a sudden I was sick, but looking back it may not have been that way. Some health issues came up, then there was the "trigger" that sent me over the edge. sometimes I wonder was it that particular trigger, or could it have been anything traumatic to my body? The 3rd choice can't even relate to.

    I feel so bad for those kids, the ones who are sick at a young age. Those are the ones we should worry about. I had a life as a kid, I traveled as an adult, I had a career....these kids will need to work around an illness that is very difficult, day to day.
     
  6. Binky123

    Binky123

    Messages:
    27
    Likes:
    3
    healthy, healthy, boom, mono....
     

See more popular forum discussions.

Share This Page