Soundthealarm21
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By Julie Rehmeyer October 6 at 5:59 PM
Eight years ago, collapsed on a neurologist’s examining table, I asked a naive question that turned out to be at the center of a long-running controversy: “So what is chronic fatigue syndrome?” I had just been diagnosed with the illness, which for six years had been gradually overtaking me.
“We don’t understand it very well,” my neurologist said, his face blank. He could recommend no tests, no treatments, no other doctors. I came to understand that, for him, the term chronic fatigue syndrome meant “I can’t help you.”
Click the link at the bottom for the meat in between.
These disputes are heartbreaking when the needs of CFS patients are so great. Even the high-quality treatment I got from Klimas helped me only slightly. A year after I saw her, I heard from some patients who had significantly recovered from CFS through assiduously avoiding exposure to mold and other environmental contaminants. Although I considered the theory wacky, I was desperate enough to experiment. And for me, it worked. Two years later, I can go running, write articles and travel with my new husband. Every time I do, it feels like a miracle.
But I don’t think it is. My recovery has almost certainly come through physiological changes in response to my avoiding mold.
Copy pasta from http://www.washingtonpost.com/natio...fff312-d458-11e3-8a78-8fe50322a72c_story.html
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