Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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What is chronic fatigue syndrome, and why aren’t we doing more to treat the illness? Washington Post

Discussion in 'General ME/CFS News' started by Soundthealarm21, Oct 6, 2014.

  1. Soundthealarm21

    Soundthealarm21 Senior Member

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    Click the link at the bottom for the meat in between.

    Copy pasta from http://www.washingtonpost.com/natio...fff312-d458-11e3-8a78-8fe50322a72c_story.html
     
    Last edited: Oct 6, 2014
    slayadragon, JAH, RL_sparky and 13 others like this.
  2. Simon

    Simon

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    What an excellent piece. I think it's great we have a successful science writer, Julie Rehmeyer, writing in The Washington Post about the illness. She covers the controversy around the P2P and IOM contracts, and includes this gem about the lack of NIH funding:
    What is chronic fatigue syndrome, and why aren’t we doing more to treat the illness? - The Washington Post
     
    Last edited: Oct 7, 2014
  3. Cheesus

    Cheesus Senior Member

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    That is of no surprise to me whatsoever.
     
  4. Battery Muncher

    Battery Muncher Senior Member

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    Haven't read it yet, but I notice that this is ranked #5 in the "Most Read: National" news on the Washington Pot website!

    So hopefully this is garnering some attention. I don't know if it's mentioned in the article, but this could be a great opportunity to push the Lipkin Microbiome Project! :thumbsup:
     
    Simon, Helen and Valentijn like this.
  5. Battery Muncher

    Battery Muncher Senior Member

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    Put up a comment to raise awareness of the Lipkin study. I haven’t had time to read the article yet, so don’t know if it’s appropriate but whatever…

    I posted under the name "BMPR".
     
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  6. Gamboa

    Gamboa Senior Member

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    Great article. I just posted it to my facebook page. Everyone should do the same. Post it anywhere and everywhere. I'm printing it for my latest doctor. Hopefully she will read it.
     
  7. Simon

    Simon

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  8. ballard

    ballard Senior Member

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  9. Forbin

    Forbin Senior Member

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    Talk about a Catch-22. The level of funding is dependent upon the number of researchers in the field... but researchers will go where the funding is, so the number of researchers in the field is dependent upon the level of funding.
     
  10. Sasha

    Sasha Fine, thank you

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  11. Valentijn

    Valentijn Senior Member

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    Battery Muncher and Sasha like this.
  12. Bob

    Bob

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    It seems to be exactly the same as the Washington Post article, so we're not missing anything.
     
    Valentijn and Sasha like this.
  13. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

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    I still opened both so both papers will know that it is a subject of interest.
     
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