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What Happened in the early eighties?

Discussion in 'General ME/CFS News' started by justinreilly, Feb 27, 2011.

  1. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    Were GMOs abundant in the 80s? I was under the impression only the last 10 or 20 years? I became sick in 2003 (age 33), so I have only been sick for nearly 8 years.

    GG
  2. IamME

    IamME Too sick for an identity

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    WHere did you hear that? I don't think there's any doubt that the Royal Free epidemic was ME. Acute onset ME is severe and will cause some degree of transient flaccid paralysis initially, and this is as true today as it was 50 years ago (people that say otherwise are out of touch and not worth listening to, as severely affected sufferers are the living proof).

    As for the spinal inflammation, AFAIK it was based on clinical signs and history not postmortems, but ironically we now have a steady stream of postmortems finding ganglionitis and neural cell death (lesions) on postmortems, some well publicised.

    Unfortunately, for reasons best known to themselves, Shepherd and Chaudhuri are declaring these cases as comorbidities or even differential diagnosis. Bizarre...


    Indeed, that and genuine ME has been driven underground. Clinics and specialists tend to never see severe cases.

    And the old outbreaks they gave people what they needed - rest - rather than abandoning them and expecting them to do more more than they can then blaming them for "push crash".
  3. Crappy

    Crappy Senior Member

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    I had never considered that. Underground, black market treatment for ME, People trying to self medicate with black market drugs or alcohol for the condition? No one really has any idea how large the segment of the population that is suffering from this condition.

    For every one person tenacious and irreverent like us, telling their doctors what the want done; how many have just resoled themselves to not finding help, or self medicating? 10, 20, this condition could be alarmingly common.
  4. dannybex

    dannybex Senior Member

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    Excellent points Carrigon. There are so many other things we could add to your list -- plastics, increasing use of chemicals and artificial colors, flavors, pesticides, fungicides (and as you say GMO foods), non-stick pans (that leach aluminum, etc.) that started in the seventies but are ubiquitous now...etc., etc., etc..

    Most of these poisons weaken and certainly disrupt immune function, thyroid function, adrenal function, etc., yet are so difficult to test for.

    It's not just about viruses, bacteria, or other infections, IMHO.
  5. rlc

    rlc Senior Member

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    Hi all, here is some essential reading on outbreaks of M.E and what really happened in the eighties! the first is an indebth report on the early epidemics of ME between 1934 and 1959 link http://www.meresearch.org.uk/information/keypubs/Acheson_AmJMed.pdf The next two look at the history of ME and contain a lot of scientific information and history and explain what really happened in the eighties link http://www.investinme.org/Documents...de Little Red Book for www.investinme.org.pdf and http://www.hfme.org/topicoutbreaks.htm the last one looks at who benifits from the lies promoted about M.E http://www.hfme.org/whobenefitsfromcfs.htm on these last two links there more links to a lot of other information!

    All the best
  6. insearchof

    insearchof Senior Member

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  7. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    I suggest you look at who got into power in the UK in the 1980s and their devastation of the nation and corruption...that would explain a lot of the background of HOW this could happen.
    The UK (or arguable, SE of it) became a "F***, you I'm all right, Jack!" society: greed, selfishness, xenophobia etc shot through the roof as our leaders encouragd such and wrecked the nation in many ways, meh :/
  8. insearchof

    insearchof Senior Member

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    I do not discount the role of government SB - but greed and selfishness infecting the minds of hundreds of treating physicans knowledgable about ME at the time, does not explain this for me. How would greed of physicians factor in here or selfishness (unless you interpret "selfishness"as apathy) explain them dumping a clinical approach to an illness backed up by scientific literature for a new model/understanding AND from a part of the medical profession that was largely seen at that time by its own members, (and still is) as a pseudo scientific branch of medicine ie the mickey mouse part of medicine? .

    If the medical professions many members (other than just those with ME practices) actively and continually spoke out against the introduction of the psycho model to replace sound bio physical findings in ME accumulated over 54 years, and debunk it for the nonsense it is - then enteroviral research might have continued and we might have had another vaccine etc. One thing is certain, millions across the world would not have been left to languish in poverty, pain and despair and written off as hypochondriac's not worthy of spending precious health $ on.
  9. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    Insearchof
    governments role is that it's policies of clampping down on dissent, lettign corportes gain more power, letting anti-Whistleblower policy and contracts come in, etc etc, created an atmosphere of tyranny.
    NHs was getting whittled down, nepotistic placements, encouragement of private health care etc etc all made for a very bad "atmosphere"

    so if someone came in and said "Hey let's claim all these folk are mental cases, we cna deny them compensation/health care, save millions!" assholes could be very supportive of it, expecially if the insurance ocmpanies said "Oh go with this we'll double out campaign contributions!"

    and since the NHS is controlled by a vast bureacracy...dissent is crushed when openness and job security is destoryed, as it was then (and is always a problem anyway in such huge, unwieldy organizations).

    there's NOTHING damn foul enough I wouldn't put past corporates or that government of the time (lol or any government especially now).

    Right man, at right time, saying right things to the right callous scumbags in power...that's all it takes.
    Doctors roll over or get silenced (booted out lose pension etc) as their organization is..another orgnization and ALL it really cares about is it's own selfish interests, that is hard fact of Human society: all our organizaitons only end up caring about their own continuance and power, not the ethos they are mean to represent/support :/
  10. markmc20001

    markmc20001 Guest

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    INsearchof. Have you considered manipulation and leverage? Maybe the scientists didn't agree they were threatened to be tossed under the bus? Don't know.
  11. SaveMe

    SaveMe *****

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    You bring up a good point, and I like your strong emphasis on vaccinations as a possible trigger. I developed ME-CFS after a Hep B Vaccine. Interestingly, many others have reported the same thing. Because of this, there are actually studies on PubMed and Ncbi/nih http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1488229/ vaccination in chronic fatigue syndrome: myth or reality? Alleged link between hepatitis B vaccine and chronic fatigue syndrome. Further evidenced by the WHO http://www.who.int/vaccine_safety/topics/hepatitisb/en/index.html.

    So why the need for reputable health organizations, research databases, and other sources disputing that vaccinations trigger CFS-ME? Because its true!!
    Dr Bell---Lyndonville, NY outbreak affecting almost all children after vaccinations.


    In addition, many people will blame a viral infection of some sort, ie flu, but people must remember that it could take a long time before one starts experiencing fatigue or cognitive dysfunction from a vaccine.
    It takes time for vaccines to throw off and impair your immune system. (in some people) Sacrificing the few to save the many!!!
  12. SaveMe

    SaveMe *****

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    Alleged link between hepatitis B vaccine and chronic fatigue syndrome.
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1488229/

    Its just really difficult for doctors to see the association between ME-CFS and vaccinations, because it wont show up on any blood test or exam. The potent vaccine altered and dysfunctioned the immune system--bottom line. They can detect that with NK cells, cytokines, etc. My immune system is over-active because of a Hep B Vaccine. Can you believe that? I wouldnt be surprised if XMRV or a different virus is transmitted through vaccines.

    SV40 in polio vaccine FACT....
    The outbreak is most remembered for the mass immunization that it prompted in the United States. The strain itself killed one person and hospitalized 13.However, side-effects from the vaccine caused five hundred cases of GuillainBarr syndrome and 25 deaths.[3][4] FACT
    And what happened to the Swine Flu pandemic that people were waiting in line to get vaccinations for? I never hear about it on the news any more??
    And why is Obama being a role model in this picture? http://news.discovery.com/human/president-obama-gets-his-h1n1-shot.html
    Its probally a set-up, because he didn't have his daughters vaccinated.
    http://www.youtube.com/watch?v=zT9fxhrjoQc (does anyone else find it amusing that the first piece advice for swine flu is "catch it"?)
    http://www.youtube.com/watch?v=1yqJKhkOXWM&feature=related (swine flu ad 1976)
    I think for the majority of Americans, vaccination is fine, but with people who have vulnerable genetics, the vaccination will cause harm, and in my case CFS-ME.
  13. insearchof

    insearchof Senior Member

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    SB- I understand how governments work and the scenario you put forward. I liken that to the beingings of privatisation of the public sector, that was taking place not only in the UK, but also here. I dont pretend to know or understand how the medical system operates in the UK, and that might add to my understanding.

    However, it still does not give me a convincing explanation for the silence of thousands of medical practitioners suddenly accepting the idea of CFS (CDC) replacing a distinct well understood diverse medical entity called ME- many of whom in the polio days, would have observed clinicial manifestations spoken of in the medical literature first hand. And I will give you a very good reason why: english common law / fear of litigation. Doctors hate the word - but it is a big motivational factor in the way they practice medicine. If a doctor ignored years of sound medical literature pointing to diagnostic tests and management and care for a condition -in favour of a new model that was not even related to the condition - they would be looking at a negligence action. That would have had many doctors familiar with ME troubled and highly motivated asking questions and rejecting the CDC CFS. And those specialist ME doctors did so - and continued to reject CFS as a substitute for ME - because it was not and is not. But what about the thousands of others ?

    MarkMC - hard to manipulate thousands of medical practitioners. One or two sure, but not thousands.
  14. markmc20001

    markmc20001 Guest

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    I think I got it insearchof, at least the tactics used today in 2011:

    Have a bunch of bogus research done and published by government researchers to make it seem like a psychological illness.

    Write about it in the news over and over.

    Have the chief of the governments CDC or MRC support the position it is psychological.

    Bingo. No more liability for the doctors treating a biological illness as psychological? The goverment, news, head of research council all officially support the position and the research is there to back it up. Old stuff is a distant memory.
  15. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    This doesn't speak well of medical profession in the UK etc if true. So large numbers of people had no morals or just threw out their Hippocratic oath? How disturbing if it were/is true. Unconscienable, how about serving the poor and weak?

    GG
  16. taniaaust1

    taniaaust1 Senior Member

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    My thoughts is that it just was more publicized in the 1980s hence outbreaks more reported. Large outbreaks have happened all over the world for a very long time eg 600 close to where where i live in the 1950s. I personally dont think it can be said it was more common then due to lack of ones who report it, we just dont know accurate figures. Less doctors would of known about it way back (before the 1980s) then then they do now.

    I also think there may be cofactors in these outbreaks eg in one big ME outbreak, there had been also an outbreak of polio at the time. It makes me wonder if some viruses or other things, weaken the body enough for XMRV or something else to take hold.
  17. anne_likes_red

    anne_likes_red Senior Member

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    Also of note re the 80's epidemics is that those doctors who were right there on the spot during the epidemics (Bell, Peterson, Cheney, and the late Dr Snow in Tapanui NZ) really hung in there for their patients. I think those doctors (and there are probably others I'm not remembering right now) saw something pretty significant in their patient populations.

    Tapanui Flu people tested positive for coxackie too I think.
  18. WillowJ

    WillowJ Senior Member

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    which? that it might have been polio? Dowset mentions this, and it's my own supposition based on the fact that LA General Hosp was documented that the persons who got the Disease walked through the polio ward, and from the notion that earlier there was more paralysis. That it had more paralysis? Not sure, I think Ramsay described some of that? Or other early descriptions? Don't recall for sure, sorry.

    I agree: There's no doubt at all that Royal Free was ME; that's where the disease was characterized and named.

    AFAIK?

    So you're saying we do have myalgic encephalomyelitis now? Cool. I had not heard and I'm happy to know this. Can you give me some citations or anything for my collection?
  19. insearchof

    insearchof Senior Member

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    MarkMC - that was the conclusion I arrived at also.

    However, I dont know - but I would question whether legally that would hold sway ie: replace medical literature of bio physical abnormalities and illness with a psychological/non physiological one. Not sure at all on that. But I bet its never been tested.


    Willow - google/visit - Hummingbirds Foundation for ME or a Hummingbirds Guide to ME - loads of information there.

    Re the LA General Hospital Outbreak in 1934 - was studied and written up about by Alexander Gilliam and became the first medical characterisation of ME. I think there were two outbreaks associated with this case. The second wave of illness amongst health care workers was thought to be due to a prophylatic of pooled adult serum via injection. These patients ended up suing the state and hospital and it was settled back then for several million dollars in 1938-39.
  20. WillowJ

    WillowJ Senior Member

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    insearchof, thanks :) I've been to hfme, but it's a huge site and not necessarily well organized. I'll check if I ever get the energy, tho. Have other pressing projects just now.

    I know the words, but I don't understand what is meant by "prophylatic of pooled adult serum via injection". Can you rephrase?

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