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What gets you through your worst crashes

Discussion in 'Post-Exertional Malaise, Fatigue, and Crashes' started by sueami, Jan 9, 2015.

  1. sueami

    sueami Senior Member

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    Hi all, I'm sorry I'm not googling this but I can barely stay up long enough to type the question. I'm in my first truly horrible crash -- lying in a darkened room for 30 minutes to an hour, up for 5 or 10 minutes to do basic self care.

    I can barely stand how awful I feel when I'm resting -- neurotransmitters and digestion are completely disregulated again, so anxiety is rampant, punctuated occasionally by horrible bouts of depression.

    Just wondering if anyone has a go-to trick that helps them through this phase of a crash. I'm noticing magnesium oil spray is helping some with the anxiety. Eating every 3 hours is helping with the hypoglycemia. Anything else that works for you I'd love to hear.

    tia,

    sue
     
    rosie26 likes this.
  2. minkeygirl

    minkeygirl But I Look So Good.

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    Mine are usually viral reactivation so I slam AVS.
     
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  3. halcyon

    halcyon Senior Member

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    I think absolute rest and supporting your body's basic needs are the only things that can help. As you mentioned, eating regularly. Also drinking a good amount of water throughout the day (2-3 liters) and plenty of electrolytes. I believe the increased inflammation of a crash leads to solute diuresis. In this state you can get dehydrated very quickly and not even realize it.

    When I say absolute rest I mean you need to be horizontal in bed, most of the day.
     
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  4. halcyon

    halcyon Senior Member

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    @minkeygirl makes a good point as well. If your ME is of viral cause, the crash probably represents an increase of viral activity.
     
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  5. minkeygirl

    minkeygirl But I Look So Good.

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    I had 2 crashes from stress related viral reactivation. I felt like I had mono, couldn't keep my eyes open, sore throat, swollen glands, crippling fatigue. The first time I upped my Famvir from 500 mgs to 1000 and within 2 days I was hugely better.

    The last time I was at 750 mgs Famvir so I stopped it for 4 days, the slammed myself with 1000 mgs. Extremely painful but again, much better.
     
  6. sueami

    sueami Senior Member

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    I'm doing Kimsie's extremely strict rest protocol. I'm up for 10-15 minutes, then down for 30-45 or more, depending on how I feel. No more than 3 hrs up a day, though maybe I should drop that back even further.

    While down, dark room. No stimulation. Dozing mostly. Mindfulness meditation if I feel too alert to doze.

    I may have some viral activity going on. Not swollen glands but a feel of flu-ishness.

    I'm going to try some monolaurin and drastically up my water intake. ty both.
     
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  7. soxfan

    soxfan Senior Member

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    Even when I am in a bad crash....trying to rest is almost impossible. My body is so wired and I feel as though electrical currents are going up and down my entire body. It is a most awful feeling yet I can't stay upright for more than 15-30 minutes without feeling as though I am going to drop on the floor.

    I drink a lot of liquids because on these crash days I don't even have the energy to eat and have no appetite at all. I always seem to feel dehydrated too.

    I stay in a dark room and listen to meditation on my Ipod. Sometimes just listening to a soothing voice helps somewhat. I also will occasionally resort to Klonopin at a very small dose. It seems to help with the wired feeling but I only use when it is almost unbearable and I need relief.

    I never have flu symptoms when I am in a crash. My body just feels like it has been drained of life but still wired. The nerve pain in my legs also become much worse...I never feel sleepy tired just like I have no life.

    Resting is the best thing to do....as much as possible.
     
    sueami likes this.
  8. Singout

    Singout

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    So sorry to hear this, @sueami . Hope you get out of it soon.

    I don't have any useful "tricks" for recovery, but also vote for rest. When resting, as I get bored really easily, I listen to meditation on my Ipod like @soxfan does.

    I've downloaded several Iyengar Yoga meditations from Itunes that I like: I especially like the ones by Morven Hamilton. (This is non-movement yoga: meditation, counting, body awareness, visualization.) I also like Tara Brach's accessible Buddhist meditations.

    Here's a link to this same question with answers from another site that might be helpful.
     
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  9. Dreambirdie

    Dreambirdie work in progress

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    Electrolytes with plenty of fluids, herbs for the adrenals, acupuncture, and lots of rest.
     
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  10. ahmo

    ahmo Senior Member

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    So sorry to hear about your crash. I've just been learning about, and using high doses of antioxidants to intervene in the nitrous oxide cycle, which seems now to be a big part of my crashes. Eating lot's of carrots, other antiox supps. And my standard, may or may not be a reasonable suggestion in your state, coffee enemas.:meh:Sending you :hug::hug:
     
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  11. sueami

    sueami Senior Member

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    Coffee enemas are starting to look a whole lot better to me. I wonder if I can send DH out for the ingredients. That'll really freak him out!
     
  12. MikeJackmin

    MikeJackmin Senior Member

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    There's an old joke about hangovers; you should be grateful to find yourself in a situation where you'll feel better and better with every hour that passes. Replace the word 'hour' with 'day' and you'll have my mantra for bad crashes. They suck, and not much helps. You just rest, and look forward to seeing them pass.
     
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  13. liverock

    liverock Senior Member

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    @sueami

    I dont know whether you are still taking the transdermal MB12,, if so it could be you are creating too many methyl groups for your slow running MAO++ and COMT+ mutations which could be the cause of the crash. If so you could try Dr Ben Lynch's remedy for overmethylating namely small 50mg doses of Niacin, to reduce excess methyl, this may help to get out of the crash symptoms more quickly.

    If this is indeed the problem then changing in future to Hydroxycobalamin B12 could be the answer which is slower acting.
     
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  14. Dreambirdie

    Dreambirdie work in progress

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    Hey Ahmo, which antioxidants do you take?
     
  15. ahmo

    ahmo Senior Member

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    @Dreambirdie I've been using astaxanthin for some time, have just moved to a higher dose. And just added reseveratrol, per Martin Pall's work on nitrous oxide and oxidative stress. Also switching from E succinate to Gamma E, per Pall's findings. Always some Vit C. In the last weeks, my body's been requesting a huge amount of carrots, up to nearly 1kg/day. Pall also lists carotenoids, including watermelon (lycopene), which I've just added, first fruit in nearly 3 years. Pall's talking about peroxynitrite scavengers, I'm struggling to understand his material. In the last 20" of the following vid you'll find a slide listing his suggestions. MTHF along w/ high dose C is about his first suggestion.

    https://www.youtube.com/watch?feature=player_detailpage&v=6A7r1gemjto
     
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  16. sueami

    sueami Senior Member

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    Liverock, I have been taking niacinimide in small, spaced doses, along with d ribose, as part of kimsie's protocol. Maybe I won't be so hesitant about how much I'm taking (I think i'm at maybe 50-75 mg), as Kimsie recommends much larger doses. I am doing my b12 subq shot and the xdermal oils. I'll try backing off on the transdermal for now. (The shots will expire if I don't keep taking them.)

    Thank you, all for the links and suggestions. I'm learning a lot through this crash, and starting to feel a bit better.
     
    liverock likes this.

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