I think the venue is crucial. Easy Access.
No Smoking. Perhaps commonplace these days ...but M.E. people need more ...
Comfortable, supportive environment - low noise level, chemical free , flourescent light free,
If refreshments are offered to the group this should include caffiene free and chemical free alternatives.
I think diet too is a difficult scenario . Accounting for gluten Free, dairy free , sugar free , individual allergies , it needs to be thought about sensitively doesn't it.
I would have appreciated learning about the hummingbird foundation, getting help with benefits and possibly advocates through the process , and having help re: tests.
All just very practical stuff really.
I was wondering about peoples experiences and what they would like?
No Smoking. Perhaps commonplace these days ...but M.E. people need more ...
Comfortable, supportive environment - low noise level, chemical free , flourescent light free,
If refreshments are offered to the group this should include caffiene free and chemical free alternatives.
I think diet too is a difficult scenario . Accounting for gluten Free, dairy free , sugar free , individual allergies , it needs to be thought about sensitively doesn't it.
I would have appreciated learning about the hummingbird foundation, getting help with benefits and possibly advocates through the process , and having help re: tests.
All just very practical stuff really.
I was wondering about peoples experiences and what they would like?