Get PACE removed from clinical guidelines – sign the petition!
Sasha invites you to sign a new petition to the HHS to protect patients against the PACE trial, CBT and GET ...
Discuss the article on the Forums.

What Do You Call It When...

Discussion in 'General Symptoms' started by Never Give Up, May 8, 2014.

  1. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

    Messages:
    603
    Likes:
    1,968
    Hi,

    My teenage son has episodes which I do not know the term for. He calls it "getting stuck." Basically he can't move on his own until someone moves his arms or legs for him, then he is usually able to move on his own, but is very, very weak. During these episodes he usually can't hold his head up and often slumps over and is unable to lift himself back up without assistance.

    These episodes usually happen in the afternoon and last for 2-6 hours.

    The night before last he didn't get enough sleep. The following day he was unable to move on his own all day. Today he was much better until around 6:00PM when it started again and lasted until he went to bed at 11:00PM.

    Sometimes it seems to be triggered by exertion, and sometimes by overstimulation. Sometimes it just happens on it's own, with no discernible preceding trigger.

    Is there a name for this? Are there theories about it's cause? Any treatments?

    Thank you.
     
  2. Ambrosia_angel

    Ambrosia_angel Senior Member

    Messages:
    444
    Likes:
    253
    England
    Have you been to the dr about this? We wouldn't be able to put a name to it but only recommend. I can't think of anything other than weakness which can have thousands of causes.
    Is he actually paralysed when he can't move or is it severe weakness?

    Also how long does it take him to recover? Are you asking whether he has PEM or not?

    If he has PEM then the only thing to do is rest until it passes and try to pace.
     
  3. Valentijn

    Valentijn Activity Level: 3

    Messages:
    11,128
    Likes:
    25,486
    Amersfoort, Netherlands
    Ambrosia_angel likes this.
  4. SOC

    SOC

    Messages:
    7,803
    Likes:
    16,298
    That sounds like a form of petite mal epilepsy. Has he seen a neurologist?
     
  5. minkeygirl

    minkeygirl But I Look So Good.

    Messages:
    4,678
    Likes:
    4,575
    Left Coast
    I know someone with Neuro Lyme that has what sounds like that. Any loud noise, some visual thing like someone waving at her, can set one off. I'm not sure about waking up like that.
     

See more popular forum discussions.

Share This Page