1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Science to Patients: Talking ME, Exercise and the Mitochondria - with Dr Charles Shepherd
The latest video release from the Dutch group ME/cvs Vereniging, with Dr Charles Shepherd from the UK ME Association, and announcing a live chat session to be held Thursday, April 10, 2014...
Discuss the article on the Forums.

What Do You Call It When...

Discussion in 'General Symptoms' started by Never Give Up, May 8, 2014.

  1. Never Give Up

    Never Give Up

    Messages:
    6
    Likes:
    0
    Hi,

    My teenage son has episodes which I do not know the term for. He calls it "getting stuck." Basically he can't move on his own until someone moves his arms or legs for him, then he is usually able to move on his own, but is very, very weak. During these episodes he usually can't hold his head up and often slumps over and is unable to lift himself back up without assistance.

    These episodes usually happen in the afternoon and last for 2-6 hours.

    The night before last he didn't get enough sleep. The following day he was unable to move on his own all day. Today he was much better until around 6:00PM when it started again and lasted until he went to bed at 11:00PM.

    Sometimes it seems to be triggered by exertion, and sometimes by overstimulation. Sometimes it just happens on it's own, with no discernible preceding trigger.

    Is there a name for this? Are there theories about it's cause? Any treatments?

    Thank you.
  2. Ambrosia_angel

    Ambrosia_angel Senior Member

    Messages:
    429
    Likes:
    226
    England
    Have you been to the dr about this? We wouldn't be able to put a name to it but only recommend. I can't think of anything other than weakness which can have thousands of causes.
    Is he actually paralysed when he can't move or is it severe weakness?

    Also how long does it take him to recover? Are you asking whether he has PEM or not?

    If he has PEM then the only thing to do is rest until it passes and try to pace.
  3. Valentijn

    Valentijn Activity Level: 3

    Messages:
    5,581
    Likes:
    7,115
    Amersfoort, Netherlands
    Ambrosia_angel likes this.
  4. SOC

    SOC Moderator and Senior Member

    Messages:
    4,959
    Likes:
    5,507
    USA
    That sounds like a form of petite mal epilepsy. Has he seen a neurologist?
  5. minkeygirl

    minkeygirl Senior Member

    Messages:
    2,003
    Likes:
    1,256
    Left Coast
    I know someone with Neuro Lyme that has what sounds like that. Any loud noise, some visual thing like someone waving at her, can set one off. I'm not sure about waking up like that.

See more popular forum discussions.

Share This Page