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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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What do you all make of my illness? Esperanza here :)

Discussion in 'General Symptoms' started by Bunchy, Jan 15, 2012.

  1. Marlène

    Marlène Senior Member

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    Edegem, Belgium
    @ judi

    who is your question addressed to?
  2. peggy-sue

    peggy-sue

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    Scotland
    Bunchy's in the uk - tests of any sort are discouraged here.
    I know I've got left ventricular diastolic heart problems - my gp won't allow me to have any tests on them at all.
    I can't get tested for hormones, VO2..
    I haven't been tested for Lyme, for Parvovirus or HHV6.

    I did get allowed a haemaglobin measurement - my gp told me this is exactly the same as a haematocrit. This is a lie.
    I've performed both tests in labs - the results give totally different meanings and they're tests for completely different things.

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