August 8th, 2016: Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis
Jody Smith joins with other ME voices in honor of Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis.
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What do you all make of my illness? Esperanza here :)

Discussion in 'General Symptoms' started by Bunchy, Jan 15, 2012.

  1. Marlène

    Marlène Senior Member

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    Edegem, Belgium
    @ judi

    who is your question addressed to?
     
  2. peggy-sue

    peggy-sue

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    Scotland
    Bunchy's in the uk - tests of any sort are discouraged here.
    I know I've got left ventricular diastolic heart problems - my gp won't allow me to have any tests on them at all.
    I can't get tested for hormones, VO2..
    I haven't been tested for Lyme, for Parvovirus or HHV6.

    I did get allowed a haemaglobin measurement - my gp told me this is exactly the same as a haematocrit. This is a lie.
    I've performed both tests in labs - the results give totally different meanings and they're tests for completely different things.
     

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