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Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
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What do you all make of my illness? Esperanza here :)

Discussion in 'General Symptoms' started by Bunchy, Jan 15, 2012.

  1. Marlène

    Marlène Senior Member

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    Edegem, Belgium
    @ judi

    who is your question addressed to?
  2. peggy-sue

    peggy-sue

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    Scotland
    Bunchy's in the uk - tests of any sort are discouraged here.
    I know I've got left ventricular diastolic heart problems - my gp won't allow me to have any tests on them at all.
    I can't get tested for hormones, VO2..
    I haven't been tested for Lyme, for Parvovirus or HHV6.

    I did get allowed a haemaglobin measurement - my gp told me this is exactly the same as a haematocrit. This is a lie.
    I've performed both tests in labs - the results give totally different meanings and they're tests for completely different things.

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