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Hi!
I was just wondering, we all here "suspect" we have ME/CFS, at least have 1 or more symptoms in common, I see the level of severity varies from person to person, I was thinking that if we want to do serious research on this topic it might be useful to gather some data that might help researchers get a better understanding on what is going on with us, so what I want to know is this:
Are there any big database/system collecting data from all of us that share the same symptoms?
If not are there any software developers here willing to contribute to create a platform to collect data from us?
I think this way we might be able to get some ideas or what really help and what doesn't
If we currently don't have a system like what I have in mind, I think anyone could contribute with new ideas for the software and we can all use our knowledge to cure ourselves.
Thanks!
I was just wondering, we all here "suspect" we have ME/CFS, at least have 1 or more symptoms in common, I see the level of severity varies from person to person, I was thinking that if we want to do serious research on this topic it might be useful to gather some data that might help researchers get a better understanding on what is going on with us, so what I want to know is this:
Are there any big database/system collecting data from all of us that share the same symptoms?
If not are there any software developers here willing to contribute to create a platform to collect data from us?
I think this way we might be able to get some ideas or what really help and what doesn't
If we currently don't have a system like what I have in mind, I think anyone could contribute with new ideas for the software and we can all use our knowledge to cure ourselves.
Thanks!