Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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what country do you live in poll

Discussion in 'General Treatment' started by markmc20001, Apr 21, 2011.


what country/continent do you live in?

  1. USA

    34 vote(s)
  2. UK

    18 vote(s)
  3. canada

    9 vote(s)
  4. Austrailia

    14 vote(s)
  5. rest of europe

    11 vote(s)
  6. asia

    0 vote(s)
  7. south america

    0 vote(s)
  8. africa

    0 vote(s)
  9. mid-east

    1 vote(s)
  10. other

    2 vote(s)
  1. Googsta

    Googsta Doing Well

    Markmc said
    There is at least one member who resides in India, he had acess to medical care but very little is known about ME/CFS so he was treated rather badly :(.
  2. taniaaust1

    taniaaust1 Senior Member

    Sth Australia
    wow.. by this according to population.. it looks like Australia has twice as much ME/CFS then the UK. Interesting as doctors are so relunctant to give a CFS diagnoses here and we've never had CFS clinics.

    Hard to say thou by just a poll like this .. better to compare proper population studies. Maybe more of us have computers or something?
  3. Graham

    Graham Senior Moment

    Sussex, UK
    I can't remember filling in anything about my sexual activity level for ages ;)

    Where do I add my entry to this poll?
  4. SOC

    SOC Senior Member

    That's not a really good conclusion based on this data. We have no idea why there are more people at PR from Australia than the UK (or more answering this poll). It may have to do with awareness of this site, availability of local support groups, more discouragement in one country or the other, or any of many other possibilities. It's quite a stretch to suggest that the membership of PR is a representative sample of all ME/CFS patients in each country, and thereby judge the relative proportion of PWME in different countries.
  5. heapsreal

    heapsreal iherb 10% discount code OPA989,

    australia (brisbane)
    it might be a more popular site to aussies as there isnt alot of support groups. probably more computers per person maybe. i know many people have more then 1 mobil phone, so alot of aussies are into electronic gadgets etc. maybe the britts are to buggered to get online from all the graded exercise and SW is slowly killing them off with cbt/get??
    Another point is that there arent many cfs gurus in australia compared to the USA, so we are on here pinching all the info we can get, some of our docs maybe abit more open to trying new things then brit docs, but not by alot. i think if i was in the uk, i dont think i would be bothered asking a doc for similar treatments seen on here, too hard. you britts need to committ a crime so you can get sent over here as convicts maybe, lol.

    garcia and taniaaust1 like this.
  6. WillowJ

    WillowJ คภภเє ɠรค๓թєl

    WA, USA
    most people in the USA don't actually have access to the specialists, either. Location, expense, or both, are a problem. I do realize that traveling several states is less far than a large ocean and several states, but at a certain point of disability, all points past a short drive (or all points out of one's house or one's bed) are equally unreachable.

    Having a few specialists is good (though the number is certainly inadequate for the population!), but we really need a huge education program to teach all of our doctors in all of our countries some things about how to assess and care for us. And to be added to the med school curricula and the Merck Manual. Correctly. And thoroughly.

  7. taniaaust1

    taniaaust1 Senior Member

    Sth Australia
    lol.. gee my humour is very dark. Maybe so heapsreal.. Wessely's keeping the ME population down in England hence more aussies here. (no one take offenseI laugh at stuff I should get upset with.. better to find humour then cry)

    That is a very good point and could be true when it comes to comparing the aussie with the USA figure. It thou shouldnt be a reason for UK and Australian comparison, the UK is in the same boat with lack of ME experts as we are. (one expert for a 3 times bigger population then ours)

    I dont think would be a factor as none of our Aussie support groups advertise PR and it doesnt get any special mention at any of the Aussie ME/CFS sites.

    Maybe Aussies like polls better?? So more did this poll?

    Is there more support groups in UK? I didnt think there was much there either.

    or maybe the pathetic English system has many of the ME people locked up in mental hospitals or scared to be expressing themselves online about their illness?

    yeah that could be true.. most of us in Australia use the info here on PR to take to our doctors. I'd believe that could be harder in the UK so maybe people there feel more hopeless in investigating the possibilities?

    The most likely reason I think could more aussies households have computers then UK people.. where could i find some states on that to find out if that is the case or not?

    Im so curious about why such huge ME/CFS per population differences (esp since in England CFS is more easily diagnosed too.. Wessely over there I believe has made it more well known then it is here in Australia.. with all his crap stuff over the years in the UK media).

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