Get a Ringside Seat for Invest in ME’s 10th International Conference on 29 May
This Friday, 29 May sees the tenth International ME Conference put on by UK research charity Invest in ME (IiME) in London. The day-long conference will include 220 participants from 17 countries and will be attended by researchers, clinicians and patients.
Discuss the article on the Forums.

What books would you suggest for ME/CFS patients/ clinicians/ researchers?

Discussion in 'Fundraising' started by Hope123, Jan 17, 2014.

  1. Hope123

    Hope123 Senior Member

    Messages:
    1,216
    Likes:
    850
    I'm helping to organize a book table for the 2014 IACFS/ME Conference. Because well-known physician and 3-time NY Times best-selling author Dr. Abraham Verghese will be speaking, San Francisco's local bookstore chain Books Inc. has agreed to host a book table at the meeting. Basically, it will be a convenient way to buy books at the meeting with a percentage of sales being donated to IACFS/ME.

    Their staff will help select books but I thought patients could also come up with suggestions and the staff could also pick from those.

    SO, what books do you think would be of interest?

    I'm being broad here. Books can range from fiction by authors affected by ME/CFS (Elizabeth Tova Baily, Laura Hillenbrand, e.g.) to books about ME/CFS, ME/CFS-related issues (fibromyalgia, gluten-free cookbooks), to general books about coping with a chronic illness. Also books about yoga, meditation etc. Books can be aimed at patients, clinicians, family members, etc.
     
  2. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

    Messages:
    2,807
    Likes:
    2,123
    Midwest, USA
    Suggestions anyone?
     
  3. alex3619

    alex3619 Senior Member

    Messages:
    8,847
    Likes:
    16,736
    Logan, Queensland, Australia
  4. Hope123

    Hope123 Senior Member

    Messages:
    1,216
    Likes:
    850
    Thanks for the bump, Bluestem and the comment alex.
     
  5. heapsreal

    heapsreal iherb 10% discount code OPA989,

    Messages:
    7,812
    Likes:
    5,629
    australia (brisbane)
    Reviving the broken marionette.
     
  6. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

    Messages:
    2,807
    Likes:
    2,123
    Midwest, USA
    I think Laura Hillenbrand’s Seabiscuit is an excellent book. It is much more that a ‘horse story’, but gives a view of the lives of the people of that era.
     
  7. taniaaust1

    taniaaust1

    Messages:
    9,208
    Likes:
    6,512
    Sth Australia
    A couple of books which tell ME as it is

    1/ Chronic Fatigue Syndrome (A comprehensive Guide to symptoms, treatmetns and solving the practical problems of CFS by Gregg Charles Fisher (this author has ME himself and his book is about him and his wife who both developed ME and shares things they tried and went throu with it)

    2/ Shattered Life with M.E by Lynn Mitchell .. the author is a dr who has ME herself.. (it tells about ME and interviews about 23 different people with ME on their experiences on how they feel about various things around it eg illness without a diagnoses, family and friends, how bad can it get, telling it how it is, how couples cope, coping with ME, facing the future etc I like some of the descriptions in this book .. its a great book for helping another to understand this illness better.
    here's a part of someone describing their worst

    "My mind was blurred like mince. I was cognitively challenged and couldnt think straight, I was struggling to remember simple things like my own name, my flatmate's name, where I had to drive to get to work or whatever. My mind was just a complete blur. My limbs were very, very weak. That's what I remember more then anything, barely being able to stand.

    The analogy I have is like a newly-born calf or lamb, really struggling to find my feet. I remember fever, a sort of low-grade fever. I remember waking every night in this horrible sweat with a high temperature and lots of achiness in my muscles. Also for the first time in my life there was s high pitched whining in my ears, tinnitus. It felt well beyond flu. It felt more severe then any infection I have ever had in my life
    ."
    .......


    Another book I like as a severe ME person.. is called "the sound of a wild snail eatting" its about a bedbound person (dont know what illness the person had but they were bedbound for a long time and she ended up finding joy in a snail). Its a great book
     
    Last edited: Jan 22, 2014

See more popular forum discussions.

Share This Page