Professor & patients' paper on the solvable biological challenge of ME/CFS: reader-friendly version
Simon McGrath provides a patient-friendly version of a peer-reviewed paper which highlights some of the most promising biomedical research on ME/CFS ...
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What are your symptoms?

Discussion in 'General Symptoms' started by Tulip, Mar 30, 2011.

  1. Tulip

    Tulip Guest

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    Everyone one seems to have different ones, i'm really interested to see how others are affected by this illness.

    Mine are:

    Severe flu like exhaustion
    Post exertional malaise
    Aching glands
    Tonsillitis - pretty much chronic
    Night sweats
    Flu like feeling through my entire spine
    Inability to regulate my temperature
    Aching organs
    Cognitive problems - trouble speaking, crossing the road etc
     
  2. Francelle

    Francelle Senior Member

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    Victoria, Australia
    The symptoms I have now are not all the same as when I first became ill in 2007.

    . Moderate fatigue which lasted for three months, which progressed to extreme fatigue lasting for four months in the first year - now minimal fatigue.
    . Heavy eyes & eyelids - still occur periodically.
    . Fasciculations - initially 30,000 per day; now only about 1,000 per day.
    . Neuropathy and neuropathy pain ++ this has not abated at all. This includes deep aching of leg muscles.
    . About eight bouts over 18 months of extreme++ gut cramping with no associated diarrhoea.
    . Stiffness of limbs now ?? alleviated with analgesia (Panadol Osteo and Tramadol and I suspect Lyrica has helped too).
    . Elevated Heart Rate
    . Orthostatic Hypotension - now much better with Florinef
    . Burning and irritated tongue - now mch better since four months antibiotics.
    . Post Exertional Malaise. This for me is NOT fatigue but a total draining of all my energy, high heartrate and inability to even stand up on those days when it occurs, which fortunately is only a few days per month mostly.
    . Cognition issues - inability to take on board new and complex information, concentration, mental fatigue!
    . Nausea/ early satiety/epigastric fullness/vomiting - diagnosed with Gastroparesis on GES scan
    . Feeling like food stuck in oesophagus - diagnosed with Oesophageal Dysmotility/paralysis with manometry
    . Constipation
    . Hyperreflexia

    These are just the symptoms I remember from the top of my head but I know there are others, which musn't be too troublesome at the moment or I would remember them - lol!
     

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