hamsterman
Senior Member
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I couldnt find this poll here, so I figured I'd add it. Please let me know if I need to change the wording or add anything.
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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That is cool that specifically social engagement is very commonly a trigger. In the future, I would be very interested to find out answers for why this is!
I seem to be really badly affected when it comes to social engagement. I was with a bunch of ME's a year ago and I was unable to follow the conversation after a half hour. If I don't have to concentrate hard I could last a bit longer. I run out of mental energy quickly and then everyone's talking becomes one to me. It's a clashing of sound and it hurts my brain. I feel pain, everything is loud and I can no longer tolerate being there.
I will also experience PEM if I use my arms - it doesn't even have to be heavy stuff, which would obviously cause PEM due to effort to lift / carry - but also reaching above my head for multiple items off a shelf will cause almost immediate malaise.
I get both physical and mental PEM, but the mental PEM started years after the onset of M.E.
Me too exactly. Only physical, and moving my arms about, even if it's only to try on a few clothes in a shop, or try playing the piano again, or doing stuff in the kitchen.I only experience physical exertion induced PEM, not cognitive nor emotional.
I will also experience PEM if I use my arms - it doesn't even have to be heavy stuff, which would obviously cause PEM due to effort to lift / carry - but also reaching above my head for multiple items off a shelf will cause almost immediate malaise.
I now have a shopping trolley and put my handbag in it. Wish I had bought one years ago. I still have to pull it along but it's still much better than carrying something. I really feel it when I am hanging washing out on the line. Putting the arms up above the head and looking up - pretty much an instant affect on the ME.I only experience physical exertion induced PEM, not cognitive nor emotional.
I will also experience PEM if I use my arms - it doesn't even have to be heavy stuff, which would obviously cause PEM due to effort to lift / carry - but also reaching above my head for multiple items off a shelf will cause almost immediate malaise.
Though, I'm not sure if that's because there is extra exertion to push blood up my arms or if there is something wrong with my actual arm muscles.
@ScottTriGuy to put it into perspective, I'm not so sure the mental fatigue would have started if I didn't do aerobic (yes running) during the time I started improving. I'm 90% sure of this. It was a big mistake.
to put it into perspective, I'm not so sure the mental fatigue would have started if I didn't do aerobic (yes running) during the time I started improving. I'm 90% sure of this. It was a big mistake.