Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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what are treatments for Parvo B 19 and M. Pneumoniae?

Discussion in 'General Treatment' started by Aerose91, Jan 27, 2014.

  1. Aerose91

    Aerose91 Senior Member

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    Ive been seeing dr enlander for about 6 months now and nothing is working for me so far. I profusely begged him to start me on Valcyte asap for HHV-6 because of how severe my psychological symptoms were and he finally agreed. however between his Hepappressin, LDN, Valcyte and other immunomodulators i continue getting worse.

    Im wondering if i should be investigating treatments for Parvo B19 and the M Pneumoniae? they came back pretty high and I really want to be aggressive with my treatments, which is why i got on the valcyte so soon. Im wondering what treamtnets are out there for these two viruses and are they effective? If so, how do i go about getting on them? I dont feel that Dr Enlander is going to put me on anything for them.

    NOTE: im not trying to wrag Dr Enlander, he's a very compassionate guy and knowlegable doctor. However, it just seems that he has a very set protocol with everyone and im looking for something more personalized and aggressive.
     
  2. SOC

    SOC Senior Member

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    I was told there was nothing established for Parvo B19 except IVIG and the side effects are often rough for PWME. Since I also had Coxsackie, we decided to try Equilibrant for 3 months and then test both Parvo B19 and Coxsackie. Happily, and somewhat surprisingly, both cleared up (according to PCR) in that time with only 1 Equilibrant daily.

    My Parvo B19 was relatively mild, though, so my experience may not apply to others.
     
  3. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    Concord, NH
    @Aerose91 So you see him in the states right? Not UK?

    GG
     
  4. Aerose91

    Aerose91 Senior Member

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    Yes, in new york city
     
  5. Aerose91

    Aerose91 Senior Member

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    If i remember cprrectly u got the Equilibrant on your own, right? Is it a risky thing to try?
     
  6. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    australia (brisbane)
    other immune mods like immunovir supposedly should help with any virus/infection, supposedly??
     
  7. SOC

    SOC Senior Member

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    My ME/CFS specialist recommended it. It is an OTC product, not a prescription one, so you buy it on your own.

    It is not any more risky than other supplements. I have heard of people having noticeable (not bad or dangerous) side effects at the full dose (6 tablets). I had no side effects at only one tablet.

    The biggest downside I see is that it's pricey, like other immune modulators. At one tablet daily, it's not bad, but at six a day the $$$ add up.

    Eta: If it's any encouragement, I got worse the first 6 months, too, but I started getting a lot better (not cured) shortly after the 6 month mark. That's not unusual, apparently. It takes time to beat back all the infections and for our bodies to start to recover.
     
    Last edited: Jan 28, 2014

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