Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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What are seminal studies in ME research?

Discussion in 'Latest ME/CFS Research' started by JaimeS, Jul 11, 2017.

  1. JaimeS

    JaimeS Senior Member

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    It's all over but the screaming, lol. Just working on the references section!
     
  2. RogerBlack

    RogerBlack Senior Member

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    I hate to mention it, but would a section on the bits of the most transparent BPS stuff be appropriate?
    I.E. the stuff that is a hair away from 'they're all making it up'.
     
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  3. JaimeS

    JaimeS Senior Member

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    I think the section on PACE ends up covering this sort of thing well. No emphasis on "most transparently made up stuff" necessary. It all looks very bad when you state it plainly.

    I was talking to another researcher on our team this evening, Rahim E. (who is working on the chip). I had just waded through all the citations for PACE because, as I put it "it's done so badly and has so many flaws that it's hard to believe unless you cite over... and over... and over again."

    It took an hour and a half just to write all the citations for PACE. Admittedly I work more slowly than a well person.
     
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  4. JaimeS

    JaimeS Senior Member

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    Realized at the 11th hour that I'm missing some of the better stuff for autoantibodies.

    I've got:

    Loebel M, Grabowski P, Heidecke H, Bauer S, Hanitsch LG, Wittke K, Meisel C, Reinke P, Volk HD, Fluge Ø, Mella O, Scheibenbogen C. (2016 Feb). Antibodies to β adrenergic and muscarinic cholinergic receptors in patients with Chronic Fatigue Syndrome. Brain Behav Immun. 52: 32-9. doi: 10.1016/j.bbi.2015.09.013. Epub 2015 Sep 21. PubMed PMID: 26399744.

    Maes, M., Ringel, K., Kubera, M., Anderson, G., Morris, G., Galecki, P., Geffard, M. (2013). In myalgic encephalomyelitis/chronic fatigue syndrome, increased autoimmune activity against 5-HT is associated with immuno-inflammatory pathways and bacterial translocation. Journal of Affective Disorders, 150(2):223-30.

    ....
    and the Tanaka, although I see some issues with it and have pointed them out:

    Tanaka S, Kuratsune H, Hidaka Y, Hakariya Y, Tatsumi KI, Takano T, Kanakura Y, Amino N. (2003 Aug). Autoantibodies against muscarinic cholinergic receptor in chronic fatigue syndrome. Int J Mol Med,12(2):225-30. PubMed PMID: 12851722.

    Any good ones on this I'm missing?

    -J
     
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  5. Alvin2

    Alvin2 If humans were rational...

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    I did not know about these effects, i suspect i will be learning quite a bit from your efforts :)
     
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  6. JaimeS

    JaimeS Senior Member

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    Whelp, I finished very late last night and sent out to the group! Thank you for all your help, guys. I will probably post as a blog post soon, or on whatever outlet is most sensible.

    I already found three typos, of course. That's the type of thing you only ever discover after you hit 'send' . ;)
     
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  7. Alvin2

    Alvin2 If humans were rational...

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    LOL!!! :woot:
    i think this should be a future studied way of diagnosing ME/CFS, our unique brain malfunctions of which there are a few
     
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  8. JaimeS

    JaimeS Senior Member

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    Heh! I think in a document with this many images in it, I'm lucky that this didn't happen.

    [​IMG]

    ....oh wait, it did. Every time. ;)
     
  9. Joh

    Joh Inactivist

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  10. JaimeS

    JaimeS Senior Member

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    I think the 2015 applies to the IOM report; it's just the first document listed.

    Looks like the formatting went a little strange; I swear, mine was prettier. ;)

    Also, there is a much longer version with sections by body system. I hope to be able to turn those sections into articles hosted on #MEAction, and on OMF if that's the sort of content they want there.
     
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  11. Joh

    Joh Inactivist

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    Sounds awesome! Is that longer version also available online?
     
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  12. JaimeS

    JaimeS Senior Member

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    Not yet, but I hope it will be, soon.

    -J
     
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  13. thegodofpleasure

    thegodofpleasure Player in a Greek Tragedy

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  14. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

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    Indeed.

    And I would have, but the link says "Anonymous User", so I didn't now who you were.

    So I certainly wasn't intentionally not crediting you @thegodofpleasure.

    In fact, I subsequently commented:

    "Not a chance - I was pointed to it yesterday by another Millions Missing Canada volunteer - so I'm not sure who, other than 'anonymous user' compiles and keeps it updated - but bless their soul."
     
  15. JaimeS

    JaimeS Senior Member

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    I'd love to be able to put you into the bibliography @thegodofpleasure -- it was a really phenomenal piece of work, and I'm indebted to you for producing it.

    -J

    [Edit: feel free to PM me with information so that I can!]
     
    Last edited: Oct 18, 2017
  16. thegodofpleasure

    thegodofpleasure Player in a Greek Tragedy

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    Thank you @ScottTriGuy

    That cloud location isn't where I posted the document I created, it's a copy - but I don't mind.

    I post my updates here: https://app.box.com/s/9s4coexxtys5bnz33i6gvqqygu67ex5o and the items highlighted in green are the most recent additions to the list
     
  17. Countrygirl

    Countrygirl Senior Member

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  18. shannah

    shannah Senior Member

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    I've shared your documents online and also with my physician @thegodofpleasure but have never known who the author was until now.
    You've done a phenomenal work. Thank you so much!
     
  19. JaimeS

    JaimeS Senior Member

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    @thegodofpleasure has sent me his info, and I will put his name into our bibliography. As I let him know, I do believe I linked to his doc at some point in the longer version, as well? If so, now I can cite it properly, and will add to the biblography either way, since I consulted it often to create the doc.
     
  20. Joh

    Joh Inactivist

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    Hi @thegodofpleasure, great document, thank you for your work, very appreciated! :trophy::bouquet::nerd:

    I couldn't find a name either in the document, but if I'm going to share it I'll look up how to cite you in Jamie's document. My question is: Would you prefer to be asked before we share it?
     
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