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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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What about ME?- documentary

Discussion in 'General ME/CFS News' started by Jenny, Mar 22, 2010.

  1. Nina

    Nina Senior Member

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    Absolutely fantastic. This is what we really need!

    Kim, I share your concern, they should include some very ill patients, but I'm quite sure they will. In fact, I heard that they have contacted some of these patients already.

    Malcolm Hooper fanclub -> count me in!!
     
  2. Tammie

    Tammie Senior Member

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    I can't get the video to work, but from what I have read so far, this sounds awesome!! I have not seen mention of Hillary Johnson at all, though I would be really surprised if they left her out of this.
     
  3. blackbird

    blackbird caged.

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    Between these two links, I find that just about anything video related can be played.

    Media Player Classic

    Codec Pack

    This is for Windows machines, and you may not need the codec pack, but I've always installed them as a pair, and can't remember the last time I couldn't get a video to play. Well, apart from the HD files from my own camera. Typical.
     
  4. Tammie

    Tammie Senior Member

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    I have Media Player, but I don't think I have the Codec Pack...will ahve to find out....thanks!
     
  5. creekfeet

    creekfeet Sockfeet

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    I'm going to have to see if I can squeeze this thing through my tiny dialup intertubes, and if not I'll have to travel to the land of wireless and watch it. The enthusiasm in this thread, alone, has got me excited for the documentary.
     
  6. shrewsbury

    shrewsbury member

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    Cannes, Oscar, Vancouver, Toronto & SunDance Film Fest winner? And a chance to have my name up on the credits!

    The 'Get Involved' button shows this:

     
  7. Tammie

    Tammie Senior Member

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    they posted something about it on facebook and I was able to watch it that way - wow! looks quite impressive....I really hope that this gets shown in the US, too and a lot of places and with good publicicty
     
  8. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    I got a reply to the email I sent the producers about setting up a patient and friends fund for people to make contributions to finance the film that would share pro rata in revenues on the same basis as other investors. This money would then be donated to ME non-profits. They are working on the idea!

     
  9. sproggle

    sproggle Jan

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    Nice one, what a great idea!! Fantastic that they're going for it too :victory: keep hearing good news at the moment it's kinda unnerving :tear: Hopefully it will last long enough for me to get use to it :D

    Jan xx
     
  10. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    Ha, ha! It certainly is a nice change of pace!
     
  11. Bob

    Bob

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    I've only just come across this thread...
    and I've just watched the promotional video on the website...

    http://www.whataboutme.biz/index.html

    I'm really impressed with it... It looks like this is going to be a really professional, top-quality, hard-hitting film, which hopefully will change a few opinions out there, and if we're lucky, shake up the establishment a bit.
     
  12. Frank

    Frank Senior Member

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  13. KnightofZERO

    KnightofZERO

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    Wonderful idea Justin and what a coup it would be if they could do it. Thanks for taking the time to write them and inquire! :Sign Good Job:

    I believe Andrea Whittemore (WPI) had an interview with them Friday of this week, hope it went well.
     
  14. shrewsbury

    shrewsbury member

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    What About Me? documentary in the making update page

    Monday, 3 May 2010

    The ash subsided enough to let me back into the UK

    After a great week or so in LA with lots of talks on funding, and attending the Britweek conference, it was time to return to the UK. Hit the ground running when the hearing of Dr Sarah Myhill came up at the General Medical Council. For those of you who have not heard of this do go to her site www.drmyhill.co.uk. She is a very popular doctor who has helped hundreds of ME/CFS sufferers.They demonstrated for her in their wheelchairs and breathing tubes, do check out the news feeds and www.theoneclickgroup.com. We have it all on film, and it will be inserted here on the site, when we recut the new trailer. There is lots of great interviews from Nevada, which you will also be seeing.

    More later.
    Posted by Double D Productions at 09:53
     
  15. girlinthesnow

    girlinthesnow Senior Member

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    Thanks for reminding me to favourite Double D's website shrewsbury. Fab that they got all the drama on film, something good from something bad.
     
  16. jace

    jace Off the fence

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    Thanks for that, Shrewsbury, I'd forgotten about the clip, and it is actually a useful one to pass on to family and friends. Don't you just love Hooper. Thank heaven for all the people working for us. I sincerely hope this documentary gets the funding to be made and the airtime to be seen by millions.
     
  17. Frank

    Frank Senior Member

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    WHAT ABOUT ME? MOVIE, Send in your picture and questionnaire

    This was published by them on facebook
    WHAT ABOUT ME? Cutting the teaser trailer with the footage from the US. Would you like to send a small photo if you're a ME sufferer? We have a great idea for them to be used in the footage of the documentary.

    http://www.whataboutme.biz/
     
  18. Frank

    Frank Senior Member

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    Thanks for the before and after photos Sandra. If everybody could do the same and send us a photo of yourself before being diagnosed, and a photo after that would be very helpful. Many thanks again
     
  19. Tammie

    Tammie Senior Member

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    I sent in a photo, but I do not look sick ( as many of us don't), so I also said in my email that I think the before and after idea might not be the best, bc too many of us do not look sick and that is such a big issue with the people who don't believe us......I really hope that they just show pics in general and don't do the before after thing - it really could reinforce the idea that if we don't look sick, we aren't
     
  20. Frank

    Frank Senior Member

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    from their blogspot:
     

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