Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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What a f**ked up disease this is!

Discussion in 'General ME/CFS Discussion' started by Kenny Banya, Dec 24, 2016.

  1. Kenny Banya

    Kenny Banya Senior Member

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    I just had a terrible night's sleep of about 3 hours & I feel great today as a result.
    It's like Nightmare On Elm Street, but with a different purpose......
    I guess it's my unintentional Xmas present to myself....
    And to quote comedian Jim Jefferies from his stand up gig 'Bare', it's the best present because it "cost me nothing"......!
    Happy Festivus!
     
    rosie26, lauluce, Jan and 12 others like this.
  2. David Jackson

    David Jackson Senior Member

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    @Kenny Banya: I had the same thing just last week; I couldn't sleep all night, and was alert for hours and hours the next day, not even feeling the fatigue you'd expect to see from a sleepless night.

    Here's hoping it doesn't catch up with you in the next few days like it did with me...
     
  3. Jennifer J

    Jennifer J Senior Member

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  4. Art Vandelay

    Art Vandelay Senior Member

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  5. MastBCrazy

    MastBCrazy

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    @Kenny Banya , Amen brother! Yeah, I hear ya - happy opposite day - 3 hrs feels great, a 'regular' sleep feels like crap (ie like usual).
    For me it can happen:
    1. at random;
    2. when I'm on the border of over-exerting the day before; and
    3. if I've had an adrenaline rush.
    First one no payback. Last two, typically some level of payback.

    Here's hoping it is all good for you, with no down-side or pay-back.

    Out of brain. Back to insomnia.
    Merry Christmas to all, and to most, a good night.
    Happy Ho Ho!
     
    edawg81, Woolie, Shakota and 7 others like this.
  6. TiredSam

    TiredSam The wise nematode hibernates

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    I've had this twice in the last 2 years, during times of heavy emotional stress. 1 hour's sleep per night for 4 nights running, then wide awake all day every day and fit enough on the 4th day to drive 2 hours, teach 4 hours, drive 2 hours back. Second time it happened I was wearing my HR monitor which showed my HR 20 beats above normal, where it stayed for 4 days until going down again and I could sleep normally again.

    I've wondered whether deliberately putting myself into extremely emotionally distressing situations might do me the world of good ME wise, as it just disappears. I assume it must be the adrenalin. Also no apparent payback. I was hoping for a thoroughly upsetting christmas this year, but unfortunately it's all going peacefully enough so far. Never mind, family arrives tomorrow for a week's stay, so there's still hope :).
     
  7. Shakota

    Shakota

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    Completely wiped out from a 3 hour visit to see family in same town. It was pleasant, grandchildren fun and very touching first-grader Christmas-crafts gifts. I thought it would be brunch, as was last year and I had brought the same requested food items but no. Got home. Could not make a cup of coffee in proper sequence until after burning pan. Then fell dead to nap. Still wiped. This is my new fibro-cfs normal or welcome to my age 67 new normal. What would Jesus M (for Mohammed and peace be upon him--don't shoot me) Buddha do? Accept, accept, accept. Boring boring boring you?
     
  8. alex3619

    alex3619 Senior Member

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    We need a new name. FUD sounds like a candidate.
     
    ahmo, Shakota, Sandman00747 and 10 others like this.
  9. Kenny Banya

    Kenny Banya Senior Member

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    Don't Conservative voters already have that?
     
    Shakota and Invisible Woman like this.
  10. TiredSam

    TiredSam The wise nematode hibernates

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    ahmo, Mel9, Invisible Woman and 2 others like this.
  11. alex3619

    alex3619 Senior Member

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    Well we are vewy vewy FUDed.
     
  12. Woolie

    Woolie Senior Member

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    Me too! I seem to have two speeds:

    1. Feel well physically + can't sleep
    2. Feel really sick + sleep all the time

    So amazing to hear other people say the same thing!
     
    Mel9, MeSci, edawg81 and 2 others like this.
  13. Forbin

    Forbin Senior Member

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    Several people on thread below, myself included, talk about the phenomenon of feeling much better when waking after only a few hours of sleep.

    The-3-times-my-me-cfs-almost-completely-vanished
     
  14. gregh286

    gregh286 Senior Member

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    Had this a lot also in last few years.
    Lack of sleep can make feel much better.
     
    rosie26 and edawg81 like this.
  15. edawg81

    edawg81 Senior Member

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    From previous post viral episodes, I knew lack of sleep helped me go into remission when it was mild. So I tried this during this most recent episode. My symptoms completely, COMPLETELY, went away while staying up really late in the beginning of this episode. I thought I was in the clear, until I woke up the next morning and I was way way worse. Been pretty sick ever since ( about 7 months now), and diagnosed with CFS/ME. Now I am careful not to do that. Definitely I feel like there is an auto immune component to this disease since sleeping well makes me worse. IMO. Interesting to know that others experience the same thing.
     
    Woolie likes this.
  16. Zombie_Lurker

    Zombie_Lurker

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    Wish lack of sleep would energize me but it does the opposite: it sends me into a tailspin.
     
    Invisible Woman likes this.
  17. 5150

    5150 Senior Member

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    Lack of sleep can not be a favorable life. It will kill you faster than not eating. But not staying hydrated is even faster.

    And by lack of sleep, I mean almost zero. Apparently, 3 hours for you is still enough to stave off Zero.

    Good wishes .
     
  18. rosie26

    rosie26 Senior Member

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    I wonder if this is because you drink more fluid during the night when normally you would be sleeping. When I have the odd night of insomnia I am reaching for sips of water all through the night.

    I've also noticed those nights when I only get a few hours sleep I seem to feel more energy, surprisingly. Maybe it is because of taking on extra fluid during the night.
     
    edawg81 and Invisible Woman like this.
  19. Woolie

    Woolie Senior Member

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    When I'm in a crash, I get my best hour or so late at night just before bedtime, then when I wake up the next morning, it groundhog day all over again. :(

    Some PR members have said they experience the same.
     
    Mel9, edawg81, Sandman00747 and 4 others like this.
  20. Cohen2

    Cohen2 Senior Member

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    I get this sometimes but then I crash big time late afternoon
     
    wonderoushope likes this.

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