The power and pitfalls of omics part 2: epigenomics, transcriptomics and ME/CFS
Simon McGrath concludes his blog about the remarkable Prof George Davey Smith's smart ideas for understanding diseases, which may soon be applied to ME/CFS.
Discuss the article on the Forums.

Well-known law prof battles stigma of chronic fatigue syndrome by going public

Discussion in 'General ME/CFS News' started by Antares in NYC, Jan 16, 2015.

  1. Antares in NYC

    Antares in NYC Senior Member

    Messages:
    582
    Likes:
    1,648
    USA
    Northwestern University law professor Steven Lubet goes public about his battle with ME/CFS

    http://www.abajournal.com/mobile/ar...igma_of_chronic_fatigue_syndrome_by_going_pub

    Very brave and positive move on his part. I applaud his courage and hope others in positions of power come forward about their experiences with the illness.
     
    Last edited: Jan 16, 2015
  2. snowathlete

    snowathlete

    Messages:
    3,312
    Likes:
    14,610
    UK
    I hope others take his lead. We need to stop going along with this disease being stigmatised. Its hard, but if more people did this, I think some attitudes would start to change.
     
  3. Bob

    Bob

    Messages:
    9,844
    Likes:
    33,946
    England (south coast)
    It's interesting that ME/CFS patients are put in a situation where they have to 'out' themselves, for fear of stigma etc.
    I think a large proportion of the blame for this must go to the psychiatric lobby, but also the media, and the medical profession and governments.
     
  4. Marco

    Marco Grrrrrrr!

    Messages:
    2,379
    Likes:
    3,175
    Near Cognac, France
    It would be nicer if there was more detail on how it affected his everyday life (despite his acknowledged 'privileged' position) and also if this sort of story appeared in more mainstream publications. Having said that a professional journal isn't a bad place for this sort of story to appear. If his legal peers get it that isn't such a bad thing.

    I woner how Steven would respond to the latest PACE spin?
     
    snowathlete, Antares in NYC and Sasha like this.
  5. *GG*

    *GG* Senior Member

    Messages:
    6,140
    Likes:
    4,734
    Concord, NH
    I left a comment, might help this gain more traction?

    GG
     
  6. Esther12

    Esther12 Senior Member

    Messages:
    8,449
    Likes:
    28,522
    Best wishes to the guy.
     
  7. snowathlete

    snowathlete

    Messages:
    3,312
    Likes:
    14,610
    UK
    I agree. I think there needs to be a normalization process, where people stop seeing it as a negative thing to be ashamed off. It is difficult though, when the comments you get back are so negative when you do tell someone you have it. I think being more open about it though could be quite benefical to us all. Perhaps we should organize a mass 'outing' together.
     
    Woolie, Cheshire, beaker and 2 others like this.
  8. biophile

    biophile Places I'd rather be.

    Messages:
    1,520
    Likes:
    16,577
    Yes, and ironic when we are told that we cling to a ME/CFS diagnosis to avoid the stigma of mental illness.
     
  9. jimells

    jimells Senior Member

    Messages:
    1,997
    Likes:
    6,099
    northern Maine
    Thank you @Antares in NYC This article was a good find. I keep thinking that a young and hungry lawyer (and there are lots of them!) will see an opportunity to profit from the government's discrimination against us.

    Or maybe I'm just delusional :confused:
     
    Woolie, NK17 and Gingergrrl like this.
  10. Sean

    Sean Senior Member

    Messages:
    3,257
    Likes:
    17,985
    It does sometimes seem as if mentally ill people now have a less stigmatised status than ME/CFS patients

    Which ain't saying much, considering how low the status is for the mentally ill in general.
     
  11. alex3619

    alex3619 Senior Member

    Messages:
    12,489
    Likes:
    35,080
    Logan, Queensland, Australia
    To this list add long standing societal pressure to ostracize and blame anyone different for any reason. Sacred be the norm. It must annoy some of them that they cannot manage to have 2.4 children.
     
    SOC, GalaxiiGrl, jimells and 3 others like this.
  12. jimells

    jimells Senior Member

    Messages:
    1,997
    Likes:
    6,099
    northern Maine
    Disgust at the idea of having 2.4 children who grow up to hate their parents, a house in the suburbs that is never paid off, and being an invisible cog in a mega-corporation before being condemned to poverty in old age are the main reasons I have refused to live a conventional life.

    I did manage to avoid the children, the house in the 'burbs, and a corporate career. The poverty, not so much.
     
  13. Yogi

    Yogi Senior Member

    Messages:
    1,131
    Likes:
    6,885

    Read it here:

    http://www.thefacultylounge.org/201...in-which-a-group-of-british-psychiatrist.html
     

See more popular forum discussions.

Share This Page