The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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Well here's a treat: Two videos of Ms Crawley, leading ME researcher, (!) delivering her TEDx talk

Discussion in 'General ME/CFS News' started by Countrygirl, Nov 7, 2017.

  1. Countrygirl

    Countrygirl Senior Member

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    This is what we have all been waiting for: a chance to watch Ms Crawley bravely following in her heroic grandfather's steps by pursuing her damaging research into very sick children despite the dangers she faces from a helpless band of bedridden patients.

    With thanks to John the Jack

    There are two videos on this youtube channels
     
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  2. Rick Sanchez

    Rick Sanchez

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    A lone beacon of intellect. Such an inspiration. So brave.

    No one has done more for helpless and abandoned children in Britain since the catholic church.

    My prayers go out to Ms Crawley. May the heroic work you have done never be forgotten in the annals of history.
     
  3. TreePerson

    TreePerson Senior Member

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    Hi @Countrygirl. Who was her grandfather?? Is this something she talks about in the video? I can't quite bring myself to watch her.
     
  4. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    fixed it for you ;)
     
  5. ChrisD

    ChrisD Senior Member

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    Isn't it ironic that she should highlight the lack of funding when the her work and others from Bristol Uni have held up funding?

    The first video comes across in a good light (if you don't know who EC is), making good awareness. Video 2 however is when she switches into GET mode and personally i find the way she puts her point across to be very very strange.

    When talking about the triumph of completing a medical trial, to say ''This was bad news for those who tried to stop us'' is very odd - the look on her face at this point freaks me out :nervous: It's very clear to me that her agenda in her work is very much driven by pride and that she has become incredibly disassociated and far removed from the reality of ME. Why does she feel the need to persecute people who are most likely severely affected and are upset that she would run such a trial? Of course it's bad news for us, because it means that money that could have been directed to biomedical research has been used for a 'treatment' that is dangerous and has stopped other avenues and approaches.

    I'm really confused about how she finds herself to be a victim in this scenario!? Has the threat letter lie been debunked yet or is it really the case that she is lying? If so it is verging on sociopathic, compulsive lying
     
    Last edited: Nov 7, 2017
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  6. Countrygirl

    Countrygirl Senior Member

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    She opens her talk with the story of her grandfather who flew missions into France at night to support the Resistance. She relates how he gave up a place at Oxford in order to protect his children and defend the country for the good of you and me. She, of course, is just like him........a born heroine to bravely face the ire of the bedridden as she ploughs ahead with her cutting-edge science.
     
  7. TreePerson

    TreePerson Senior Member

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    Thanks. I've been trying to work out which is the vomit emoticon.
     
  8. Countrygirl

    Countrygirl Senior Member

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    It would be very well used if we had one @TreePerson . :thumbsup::hug:
     
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  9. boombachi

    boombachi Senior Member

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    face-with-open-mouth-vomiting_1f92e.png this one?
     
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  10. Countrygirl

    Countrygirl Senior Member

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  11. TreePerson

    TreePerson Senior Member

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    @boombachi Yes! That is an excellent vomit emoticon. Very satisfyingly large and green.
     
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  12. anni66

    anni66 mum to ME daughter

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    Explains a lot. Methinks a decent psychologist could have a field day with this.
     
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  13. Nielk

    Nielk

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    Her entire theme is based on her grandfather - "the Right thing to Do". The way she builds up her storyline is a psychological method of sculpting the audiences views and opinions. By the time she gets to the accusation part, she has built up an image of a superwoman who against all evils, will fight and prevail - because it is the right thing to do.

    Of course, it's all a distortion and based on a skewing of facts, but the audience doesn't know that. Not knowing the other side of the story, how can the audience not sympathize with her. Regardless of all the abuse she says she has been a victim of - she still prevails because ...children.

    For those who know the facts though, she is a pathetic manipulator.
     
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  14. Ember

    Ember Senior Member

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    Dr. Crawley recalls her traumatic childhood:
    What did Dr. Crawley learn? “As a grownup, I’ve had to reconcile that, and I’ve had to forgive. And I think it’s probably a good thing that I don’t scare easily. But if I could, I would take away those experiences of my childhood because I really believe that children shouldn’t be forced to be brave.”
     
    Last edited: Nov 7, 2017
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  15. Alvin2

    Alvin2 If humans were rational...

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    Her grandfather would be proud of her for harming children by using ineffective and/or harmful treatments?
    Is she getting back at humanity for almost drowning and having a stern father?
    Why is it abusers who complain about things like being stalked and defamed. Are they so afraid that people won't believe their lies that they need to cover for them by claiming victimization?
    I agree with her grandfather, she should do what is right, stop pushing lies or move on to a a field that needs her talents such as homeopathy or phrenology
     
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  16. PhoenixDown

    PhoenixDown Senior Member

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    @04:00 - Crawley compares us/her critics to anti-vaxer extremists. Pretty low move if you ask me.
     
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  17. Forbin

    Forbin Senior Member

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    Persevering in the face of the objections of others is not, in and of itself, necessarily a virtue. You have to be aware of what the objections are in order to judge.

    She never mentions the nature of her trial, what was being tested, or the basis of her detractors' objections. Never-the-less, the audience applauds her dedication and "success."

    For all the audience knows, the trial could have involved Ouija boards, tarot cards and leeches, and yet they still would have given her a rousing ovation for her brave triumph over her detractors.
     
    Last edited: Nov 8, 2017
  18. Alvin2

    Alvin2 If humans were rational...

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    I noticed that too, but we know what she is about and we are the victims (i mean target market)
     
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  19. boombachi

    boombachi Senior Member

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    I don't know what that means. Feel free to use it. I downloaded it off the internet. Or do you need me to upload it somewhere? Sorry I am so ignorant about technology.
     
  20. wastwater

    wastwater Senior Member

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    It seemed alright to me she was wanting more research into me/cfs
    She should move away from things like lightning thearpy and concentrate on things like genetics and b cells ect
     
    Last edited: Nov 8, 2017

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