James Coyne “lays waste” to PACE trial in Edinburgh
Sasha summarises Professor James Coyne's recent no-holds-barred talk on the PACE trial and points you to the slides, video, audio and transcript.
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Welcome to our newest forum, "In Memory of".

Discussion in 'In Memory of ...' started by Kina, Feb 27, 2015.

  1. Kina

    Kina Moderation Team Lead

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    Welcome to our newest forum.

    This is the place to remember those who were important in our lives, and are no longer with us.

    We want to ensure privacy and respect for those we have lost, and for their families and friends. All messages will therefore be held in moderation before being posted on the forum. Our volunteers reserve the right to edit posts to remove sensitive personal information: please avoid posting personal data such as addresses or phone numbers. Please also avoid giving real-world, full names unless the member was known by that name on the forum or the family has given permission.

    Please feel free to respond to any thread here. As this forum is public and exists to both honor those who have died and to comfort those who loved them, the tone of the posts should reflect this intention. Please feel free to add anecdotes, post links to the person’s discussions within Phoenix Rising...or just say how much you miss them. Though these people are gone, they are still very real to us, and not just anonymous names on a website. They were our friends, part of our community, our international family. We cannot bring them back, but we can honor them here.
     
    Joh, helen1, eafw and 12 others like this.
  2. Gingergrrl

    Gingergrrl Senior Member

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    @Kina Thank you for doing this and I love the idea.
     
    Kina likes this.
  3. Andrew

    Andrew Senior Member

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    @Kina Which email address could a family member us in case one of us dies. This assumes that family member is not a forum member and is emailing notices according to a contact list.
     
    Last edited by a moderator: Oct 18, 2015
  4. Kina

    Kina Moderation Team Lead

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    @Andrew If they click on the 'Contact Us' button at the bottom of the page, I am the one who deals with those emails and would pass on any information on the forums.
     
  5. Esther12

    Esther12 Senior Member

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    Jeez Andrew - potentially ominous post there... take care of yourself!
     
    Valentijn likes this.
  6. Andrew

    Andrew Senior Member

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    They can, but then we have to write out this whole explanation on the contact list. Would be easier to just have an email.
     
  7. Andrew

    Andrew Senior Member

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    Thanks. I'm off to the hospital in 15 minutes. Too late to update the list anyway. I think it will be okay, but it's more comforting if I have my bases covered.
     
  8. Kina

    Kina Moderation Team Lead

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    The contact form is an email form. A family member would still have to write an email so I am not really seeing the problem.
     
  9. Andrew

    Andrew Senior Member

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    The difference is they can simply send an email from whatever device they use, rather then navigate to this forum and find a link. Simplicity encourages follow-through.
     
  10. SOC

    SOC

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    Perhaps this is a situation that would benefit from a volunteer. They'd need a throw-away email address that could be used only for family or friends reporting the loss of a member. Are there email addresses available through PR for staff members? If so, this could be a simple volunteer job -- just monitor the email address on a regular basis. It would be minimal work since (I hope) we don't lose members to death frequently.

    I would not want this to be another job for our already over-worked staff. If it could be done, it should be a volunteer job for someone else, like the birthday thread.
     
    Sushi and Kina like this.
  11. Kina

    Kina Moderation Team Lead

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    We could set up an email address for this and like @SOC suggested we would need a volunteer to look after this.
     
    Sushi likes this.
  12. SOC

    SOC

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    Any volunteers? :D
     
  13. Esther12

    Esther12 Senior Member

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    What about when the volunteer dies?

    PS: Pleased to see Andrew survived his hospital appointment. Fingers crossed for no more memorial threads for a good long while yet.
     
  14. Andrew

    Andrew Senior Member

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    I don't know why this has become so complicated. If you don't want to give out the contact form email address, all you have to do is create an email address in the control panel of the hosting account, with a forwarder to whichever staff member manages this project.
     
  15. Kina

    Kina Moderation Team Lead

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    It's not complicated. @wdb any thoughts?
     
  16. wdb

    wdb Senior Member

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    Yeah we can do any of those things, I don't really see a problem with the contact form though, any device that can send email can probably just as well manage a contact form. The only advantage of a forms is a soon as you make an email public it tends to end up in spammer databases.
     
  17. Andrew

    Andrew Senior Member

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    Thanks. This turned out to not be like my last trip to the hospital. My doctor told me I'd be there for days, but I was in and out in 4 hours. What I'm finding out is that cancer follow-up is not only about relapse. It's also about dealing with the collateral damage from cancer treatment, and the fact that it has opened me up to other serious health risks.
     

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