Weird neurological symptoms

[optimist]

But I have severly leaky gut, so I almost need to take these...

 

[Gondwanaland]

But I have severly leaky gut, so I almost need to take these...

I know, I have been there too

 

[optimist]

This bad:

 

[Gondwanaland]

I don't have access to such exams here where I live. But I got better, and you will too.

 

[optimist]

The test is from Genova in the US. I took it through a lab here in Norway, but one can perhaps order from Genova directly... not sure.

 

[optimist]

What she's talking about sounds familiar, but I believe in my case this symptom should be in connection with the nerves going wild thing:

 

[Inspired]

Optimist, thanks for sharing the video.
I experienced several of the symptoms you described. I remember researching and finding many possible causes. My symptoms matched several conditions (I had many symptoms in addition to what you listed). I channeled my inner Nancy Drew meets House and investigated & addressed if needed: very high mercury; deficiencies of B12, B6, zinc, E, glutathione; neurotoxins; excitotoxins. I ruled out: autoimmune, movement disorders, seizures, lyme, chronic candida, TIA, methylation issues, food sensitivities, schwannoma.

I wish you lots of patience and good guidance. I'm very glad for you that you have an excellent Functional Medicine doctor.

Let us know the results of your MRI.
BTW, magnesium (Calm powder) helped my nerves calm down.
I turned out, nerve damage from a brain cyst was causing the twitching. I don't mention that to say that I believe that's what's going on with you. I only say it because you may wonder what was the result of all of the detective work and testing.
Take care,
Inspired

 

[optimist]

Thanks for the good list @Inspired! That gives me something to work on. Right now I have a loose theory that proteins are getting into my bloodstream and end up somewhere where they mess up badly... perhaps inflaming the nerve system.

I took the MRI yesterday and will have the results in a few days.

At the moment I am taking ButyrAid which has 600mg of magnesium, and I am not sure about the bio-availabillity of it, but I am also a bit reluctant of taking more...

Sorry about the cyst they found! Hope it can be treated and I wish you all the best!

 

[optimist]

Well, I had a call from the doctor now and they did find something, but he's not sure what yet. I will have to go see a neurologist to do further investigations. The doctor said that my nervous system was over active.

 

[Inspired]

@optimist, very interesting that doc called you back. Let us know what happens at your appointment...

 

[optimist]

Now I am 98,23% certain that what I am having is triggered by the consumption of protein (meat, chicken, fish not eggs so far, but I am not tolreating them it seems :/).

 

[Gondwanaland]

Perhaps it is an imbalance caused by lack of B12 co-factors.

 

[Inspired]

@optimist, There definitely were foods that made me feel hyper. This included raw kale, hemp protein powder, grains, methyl folate supplement...

Good luck with your investigation. I wish you lots of patience.

 

[Valentijn]

Now I am 98,23% certain that what I am having is triggered by the consumption of protein (meat, chicken, fish not eggs so far, but I am not tolreating them it seems :/).

If it were an alpha-gal allergy (caused by some tick bites), chicken and fish shouldn't be a problem. So that's one thing to cross off the list, I suppose

 

[Valentijn]

@optimist - A supplement I reacted to very badly with painful full body swelling was creatine. It's naturally in all meats (though seemingly not in eggs?), including poultry and fish. Maybe some of us react to it in various ways if we get too much.

 

[optimist]

Thanks for pointing that out @Valentijn! Apparently I can tolerate egg white (not yolk), but to get the protein I need for one day I would have to eat 700g of egg white...

 

[optimist]

I bought pea protein powder today. Took 25g and had reactions after an hour... it seems that I am maybe reacting to an amino acid...?!

I am wondering, if I got an essential amino acid product like this:
http://www.iherb.com/Now-Foods-Sports-Amino-9-Essentials-Powder-11-64-oz-330-g/23658

Could I survive on that?

 

[Gondwanaland]

I bought pea protein powder today. Took 25g and had reactions after an hour... it seems that I am maybe reacting to an amino acid...?!

Tryptophan, Tyrosine/Tyramine
Take a look at the thread about BCAAs by Mary.

 

[optimist]

Tryptophan and tyrosine/tyramine seem to be higher in eggs than in peas. Did I understand correctly that they should be lower for less reactions?

 

[Gondwanaland]

Yes, and Mary talks something about reversing tryptophan dominance, which leads to muscle weakness.