Early last summer I started having less energy than normal. Soon, bizarre neurological symptoms were experienced daily with frequent visits and overnight stays to the hospital. Things increasingly intensified from mid-summer to November before things settled a bit. All this time my weight was dropping and I was referred to an endocrinologist who did poor mans ttt'ing and decided I might have POTS. He referred me to a neurology hospital unit for one week where seizures, Parkinsons etc. were ruled out. Was then put on florinef to help raise my chronic low blood pressure and hopefully get some symptom relief while I waited for my TTT'ing date 4 months later. I have continued with the florinef but I continue to lose weight despite salting foods/drinking the required amount of liquids.(salt pills and 3 litres water/day) Blood pressure is averaging about 110 / 70 so I think the florinef is working, at least somewhat. But why would I lose weight instead of gain it? I'd increase my florinef even further so that I could get even a better bp recording and hopefully accomplish more fluid retention, but I don't want to risk increasing my migraine frequency. (2-3 x week) Any input is much appreciated. ...12 yrs ago was diagnosed with NMH and with POTS January 2013.