Over the last 18 months I have lost around 6 kg because at times I totally lose my appetite when my ME is very bad. It may not sound a lot but I was never big to start with only 45 kg. Now I weigh only 39 kg. I am very very worried as I am now battling accusations from the specialists that I have an eating disorder. I have told them til im blue in the face that I have not got an eating disorder and that my weight loss and lack of appetite is because I feel so poorly all the time cos of the ME and IBS I have.What can I do. Im trying my best to eat high calorie food etc but on very bad days I just cant face food. My husband has even told them Im not anorexic. I have found it to be very upsetting and don`t know how to deal with it now. These kind of opinions do not help ME and I did try to point out that they wouldn't suggest to someone who had a chronic illness that wasn`t ME that they had an eating disorder. What can I do?