• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

We need your GET story to publicise #stopGET petitions

Jenny TipsforME

Senior Member
Messages
1,184
Location
Bristol
I didn't get alerts for those last few comments :(

We are doing a thing for ME Awareness month Missing More After Graded Exercise Therapy (#MissingMoreGET)

The idea is to tie in a bit with Millions Missing: Some people are missing more of normal life unnecessarily because they were given bad advice to do graded exercise (or assumed exercise was good and weren't advised to be careful).

We're going to post blog posts from www.stopGET.org and have them scheduled throughout May. I'm sort of assuming if you shared your story here to be publicly shared then you'll be OK with that (eg @JaimeS @ClarkEllis @Valentijn). Let me know if this is a wrong assumption!

Instructions if you want to write something new for it are here:
http://www.stopget.org/2017/04/missing-more-after-graded-exercise-therapy/

We can also reblog relevant blog posts you've already written.

Input welcome from anywhere in the world and all ages, especially examples of child GET.