You should have heard about the #stopGET petitions to suspend/stop graded exercise therapy trials in the UK by now. If not, SIGN NOW AND SHARE, SHARE, SHARE! UK petition (we need 10,000 signatures): https://petition.parliament.uk/petitions/166601 Global support petition everyone can sign: https://my.meaction.net/petitions/stop-graded-exercise-therapy-trials-for-me-cfs Info to share for people who won't immediately get it: http://www.meaction.net/2016/09/12/uk-and-global-petition-its-time-to-stop-get-trials-for-mecfs/ and the campaign site www.stopGET.org Ideas for publicising the petition yourself: https://tipsforme.wordpress.com/2016/09/15/petition-publicity/ The best logical argument for suspending research like MAGENTA (child GET) is the PACE debacle. Personal stories are also a really useful tool for making a heartfelt connection with the general public. The stopGET team could do with personal GET stories for press releases, articles, blog posts. If you or someone you know has a bad GET story to tell: Email GETpetition@gmail.com your story in one or two paragraphs (and add here if you want to) It would be particularly interesting to hear from people who did GET as a child and parents of children (but all ages appreciated). Concrete examples of how your health and limitations changed are helpful. How did you feel after GET? Did it stop you doing certain activities? How long did the impact last? Imagining that the person reading knows nothing about ME could help you explain. Do you have pictures you are comfortable sharing? Visible before and after GET changes would be particularly poignant. Your story will be shared widely. Do you want to use a pseudonym or do you want to use your real name (plus contact details)? Please make this very clear. Please also ask people you know who have a powerful story to contribute. If we don't reply immediately it will be post MillionsMissing PEM related (I ache loudly all over today through painkillers). It would be brilliant to have some stories ready to use as soon as the PEM clears though. If someone (eg @JaimeS @Keela Too @katharine_c @Sasha @AndyPR @Tom Kindlon or anyone else who wants to take this on) could share this on relevant facebook groups that would be much appreciated. Please comment if you've done this so we don't waste spoons.