The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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We need a list of institutions and universities, which do serious biomedical research about ME/CFS.

Discussion in 'Advocacy Projects' started by DanME, Aug 13, 2015.

  1. DanME

    DanME Senior Member

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    Hi,

    our German ME advocacy organisation needs to prepare a list of institutions and universities, which conduct serious biomedical research on ME/CFS. Especially in Europe. We need the list to win some politicians over. Could you help us? We don't want you to do our work, but if some research institutions spontaneously come into your mind (e.g. from Belgium, the Netherlands, Scandinavia, Spain, Portugal, Greece and so on) plz list them. Or maybe you know a list, which we could use?

    Thank you so much!

    Dan
     
    Last edited: Aug 13, 2015
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  2. deleder2k

    deleder2k Senior Member

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    Haukeland University Hospital, Norway
    Oslo University Hospital
    St. Olavs Hospital
    University Hospital of North Norway
    Telemark Hospital
    Norwegian University of Life Sciences
     
    Last edited: Aug 13, 2015
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  3. Jonathan Edwards

    Jonathan Edwards Senior Member

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    You might do well to contact the Invest in ME charity in the UK who run an annual colloquium where most of the groups attend. You may also get useful information from @charles shepherd at MEA. Just off the top of my head I would suggest googling up details on:

    Prof Juliá Blanco in Barcelona (university virology unit - check details)
    Prof Anne McArdle, University of Liverpool
    Prof Julia Newton and Dr Stuart Watson University of Newcastle
    Profs Tom Wileman and Simon Carding of University of East Anglia
    Dr Geraldine Cambridge of University College London
    Dr Amolak Bansal of St George's Medical School (St Helier)
    Prof Jonas Blomberg (Sweden)
    Prof Carmen Scheibenbogen Berlin Charité (you will know)
    Dr Luis Nacul and Dr Eleana Lacerda, London School of Hygiene and Tropical Medicine (ME Biobank) (part of Univ Coll London)
    Dr Neil Harrison, University of Sussex UK

    Outside Europe there is the Griffith University unit in Brisbane and there are several US groups: Lipkin and Hornig at Columbia University, James Baraniuk, Maureen Hanson, Betsy Keller, Nancy Klimas and Gordon Broderick, and Montoya to name a few - there is a US ME organisation with meetings that will give all the names.
     
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  4. Sasha

    Sasha Fine, thank you

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  5. Sasha

    Sasha Fine, thank you

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    I think you must mean this one:

    http://iacfsme.org/
     
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  6. Sasha

    Sasha Fine, thank you

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  7. barbc56

    barbc56 Senior Member

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    This would include a lot of doctors but not sure how much is research nor does it cover the whole spectrum of our illness.

    The University of California has an excellent pain clinic.

    What about sleep clinics?

    It sounds like the list is for treating all of me/cfs symptoms, so ignore this if it's not relevant.

    Great thread!
     
  8. DanME

    DanME Senior Member

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    We are rather interested in institutions, which conduct serious biomedical research on ME/CFS in order to demonstrate, that a lot of scientist and doctors out there actually think, ME is a biological, physical disease. I think it is not that hard to proof. Times have changed in our favour. I think, we are at a breaking point. But we need a serious list to win some important people and politicians over. It's part of the advocacy work, I guess. The more people we convince, the faster things can change...

    Thanks for your answer anyways. :)
     
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  9. DanME

    DanME Senior Member

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    Thank you so much for your detailed answer Dr. Edwards. This is a great start! Contacting Invest in ME and MEA is also a fantastic idea. Great article in the Norwegian newspaper btw! It was a good read and brought a big smile to my face...
     
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  10. Sasha

    Sasha Fine, thank you

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    @DanME, I suggest that as well as listing these scientists you also cite the IOM report and P2P report - which clearly state that ME is an organic disease not caused by psychological problems.
     
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  11. wastwater

    wastwater Senior Member

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    Is it important to get an ME diagnosis
     

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