- Messages
- 12
- Location
- Lancashire, UK
I apologise if this is gibberish - I am not having the best day symptom/brain fog wise...
When I first got ME (about 2 years ago today), thankfully I knew a couple of other people who have had this illness for decades and so were full of advice for my early days. A Lot of it has been very helpful regarding keeping a stiff upper lip and not letting the illness mentally drag you down as much as it successfully does so physically.
The parts of the advice that I have struggled to put into action are the following two points:
1) do an equal amount of activity every day - if responsibility take over and you find yourself having done a lot on one day: try not to do absolutely nothing the next day.
2) avoid going to bed as much as possible, under the assumption that once you take refuge in bed it gets harder and harder to get out of it.
Obviously, there are times when I get so ill that I have no choice but to get to bed until it passes.
I understand this advice as being based around pacing, and avoiding deconditioning. However, I struggle to balance this advice with other advice that I have received re:aggressive rest.
what are others opinions and experience of this?
When I first got ME (about 2 years ago today), thankfully I knew a couple of other people who have had this illness for decades and so were full of advice for my early days. A Lot of it has been very helpful regarding keeping a stiff upper lip and not letting the illness mentally drag you down as much as it successfully does so physically.
The parts of the advice that I have struggled to put into action are the following two points:
1) do an equal amount of activity every day - if responsibility take over and you find yourself having done a lot on one day: try not to do absolutely nothing the next day.
2) avoid going to bed as much as possible, under the assumption that once you take refuge in bed it gets harder and harder to get out of it.
Obviously, there are times when I get so ill that I have no choice but to get to bed until it passes.
I understand this advice as being based around pacing, and avoiding deconditioning. However, I struggle to balance this advice with other advice that I have received re:aggressive rest.
what are others opinions and experience of this?