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want to find the best treatment center for AML - acute myeloid leukemia

Discussion in 'Other Health News and Research' started by November Girl, Jan 12, 2013.

  1. November Girl

    November Girl Senior Member

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    A family member has AML, and has not responded adequately to the normal two rounds of chemotherapy. She is at an NCI cancer center hospital now. Is there an NCI that specializes in treating leukemia, or has a higher success rate in treating this type of cancer?
     
  2. user9876

    user9876 Senior Member

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  3. November Girl

    November Girl Senior Member

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    Thank you! I'm looking for patient communities. I'm encouraging them to follow the route of ePatient Dave -
    -----------------------------
    Dave’s Story -- from http://epatientdave.com/about-dave/
    “e-Patient Dave” deBronkart was diagnosed in January 2007 with Stage IV, Grade 4 renal cell carcinoma (kidney cancer) at a very late stage. His median survival time at diagnosis was just 24 weeks; with tumors in both lungs, several bones, and muscle tissue, his prognosis was “grim,” as one web site described it.
    He received great treatment at Boston’s Beth Israel Deaconess Medical Center: his surgeon removed the extensive mess (laparoscopically!), and the Biologic Therapy program helped him participate in a clinical trial for the powerful but severe High Dosage Interleukin-2 (HDIL-2). His last treatment was July 23, 2007, and by September it was clear he’d beaten the disease. His remaining lesions have continued to shrink.
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    from what he told Jim -------- When he first received his diagnosis/prognosis, he obtained digital copies of his medical records, and placed them online on a site like Google Docs. He then went to any online patient community related to kidney cancer. There he described his situation, posted a link to his records and asked for advice. Various doctors and patients took the time to review his info & responded to him. From that he found the experimental treatment that cleared his cancer.

    http://en.wikipedia.org/wiki/Dave_deBronkart

     
  4. user9876

    user9876 Senior Member

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    Sorry don't know anything about patient communities.

    I know a lot of cancer patients get treated as part of clinical trials which sometimes offer new treatments. On discussing treatments my friend was told that if the treatment she had failed then they had a clinical trial running that they would try her on.
     
    November Girl likes this.

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