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WANT TO BLOW $9000 in one DAY?

Discussion in 'ME/CFS Doctors' started by SaveMe, Feb 16, 2011.

  1. SaveMe

    SaveMe *****

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    then go visit the CHENEY CLINIC. thats right 9k

    Ill put it on my credit card and then work to pay it off. Oh wait, I cant get out of bed most days!
  2. SaveMe

    SaveMe *****

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    test

    : ) testing comment
  3. Navid

    Navid Senior Member

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    if u want gc-maf....find a doc to write prescription for you thru bcgli or david noakes and you are now 9k richer
  4. SaveMe

    SaveMe *****

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    yeah good idea
  5. Daffodil

    Daffodil Senior Member

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    9K? are u kidding me??
  6. SaveMe

    SaveMe *****

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    Im sorry it could be as high as $10,000

    it states "Patient contact as well as chart review and letter writing or filling out forms are charged by the minute of Dr. Cheney’s time. The exact charge per minute is subject to change and is currently set at $11 USD per minute or $660 USD per hour. A typical initial two day visit will cost between $8,000 USD and $9,000 USD plus or minus $1,000 USD."
    "Most insurance carriers pay at some level for our services but many pay nothing."

    $660/hour.....wow! And I know the 9K is for two days, but this is really taking advantage of the sick. All other CFS specialists charge considerably less for their time--Dr. Petterson even!

    What they are doing essentially is comparable to sneaking into a nursing home at night to snatch wallets and purses from the elderly. Its disgusting. :In bed::In bed::In bed:

    So if you are not a celebrity with cfs then get the hell out of here!

    If your going to see a specialist go see Klimas,Enlander,Petterson--the best in the field.
  7. Navid

    Navid Senior Member

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    gc-maf it' s not just for cancer pts anymore

    look up gc-maf string on board here....there are abt 10 ppl taking in hopes to recover their health. they all have me/cfs.

    it is cheney's newest wonder drug and KDM is prescribing to his pts.
  8. kat0465

    kat0465 Senior Member

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    Im all for Dr's making a living doing what they supposedly love, hey it's america. we all should be lucky enough to make a good living working.

    But i do however have a problem with Dr's who become filthy rich from very sick patients, who feel they have no option but to scrape up the $$$ for a little pinch of hope to have a fairly normal life!!!

    it's not just cheney, he's just one thats in the spotlight, several years ago there was a dr in the next town over from me who supposedly was treating cfids. you bet i went to see him, and all i saw was a quack who was testing for allergies, and giving iv albumin( spelling) and charging 1500.00 A POP FOR THE INFUSION! Ins wouldnt pay, and My ins wouldnt even pay him for the allergy testing because i was informed there was a lawsuit between him and the Ins.

    i didnt do the iv's( couldnt afford it)but i saw tons of people hooked up to poles and afterwards become severly Ill from the so called treatment. when i told my Now dr about this she was stunned, said that iv albumin had been shown to not work at all, and how was those people affording that!

    and like i told her, when your this sick you will do anything to be better, even go in debt and loose your home or whatever else you have.

    Not trying to badmouth anybodys Dr. but Im sick and tired of all of this!!! wheres the compassion really, and he knows what it feels like to be deathly ill..... Just sayin.

    Kat
  9. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    There are at least 20 patients on this forum taking GcMAF for ME/CFS (not all of them have added their names to the spread sheet). I am one of them. I pay 35 eu per weekly dose. I am hopeful! KDM has approx. 180 ME/CFS patients on it.

    Sushi
  10. Lynn

    Lynn Senior Member

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    My insurance limited the hourly payments to just one hour of Dr. Cheney's time. I had to absorb the rest. Many of the initial tests were paid for. But that was over ten years ago and things have changed in the insurance industry.

    Needless to say after seeing him for a few years, I was not cured. Not Dr. Cheney's fault. He is on the cutting edge of treatments. They just have not found the "it" that will cure us yet.

    Lynn
  11. SaveMe

    SaveMe *****

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    whos KDM ? ?
  12. SaveMe

    SaveMe *****

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    thanks Lynn for your input.- I agree.
  13. SaveMe

    SaveMe *****

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    Damn, sorry to hear that. There is nothing you cherish that this illness cannot take way. nothing
  14. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Dr. Kenny De Meirleir in Brussels. His clinic is Himmunitas. He is both a researcher and an MD specializing in ME/CFS for over a decade. Lots of Board certified specialties and publications.

    I traveled from the US to see him. He charges 70 eu for the first visit and 50 for subsequent ones. He is also in collaboration with Cheney and the other big name ME/CFS docs.

    Sushi
  15. SaveMe

    SaveMe *****

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    thanks ill look him up.
  16. Crappy

    Crappy Senior Member

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    I have used some powerful adjectives to describe this condition, but your statement was succinct and painfully descriptive. This slow miserable death has got to be one of the most sadistic ways to die ever concocted. Compounded by doctors who range from incompetent to just plain usurious; and a public who couldn’t be more apathetic toward us. I can’t understand it, but it is happening to us all, real time. We can honestly say we know what it is like to be openly discriminated against, while our government actively denounces discrimination, and claims to protect people from it. Hypocritical lip service.
    overtrain likes this.
  17. SaveMe

    SaveMe *****

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    you are right, crappy. Lets just keep praying, thats all we can do. right?

    question 4 everyone

    1. Exhaustion
    2. Widespread muscle pains
    3. Headaches
    4. Brain fogs- (attn./concentration) can stare blankly for long periods of time, where did I park the car? (short term memory loss) A distinct shift in cognitive function during onset. Disorientation- lost in amusement park. Where am I? Metal fatigue. Sluggish thinking.
    5. Excessive mucus in throat that I spit up
    6. Sunlight sensitivity really hurts my eyes, tear up easily
    7. Initial rapid, sudden weight loss during onset of virus
    8. Loss of strength, (can’t make a strong fist)
    9. P.E.M (bike ride incident, even during exercise) wiped out the following day
    10. Dizziness (especially during exercise)
    11. Un-refreshing sleep
    12. Feeling that I am approaching death (episodes) horrible malaise
    13. Pulsating/Pounding/Faint head upon standing  Orthostatic Intolerance
    14. Pain/Temp sensitivity (colder than usual, hot flashes, pat on the back incident)
    15. Swollen lymph nodes in neck and groin area felt by doctor
    16. Missed days of school, can’t get up from chair/bed—what happened to my internal energy supply?
    17. Grinding/Snap, crackle, pop neck (stiff in mornings)

    How many of these do you have? and if so, which number(s) Thanks
  18. kat0465

    kat0465 Senior Member

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    you got that right! although i have a pretty decent dr now, there was a time i just knew i was going to die on a ER floor.now i cant work at a prefession i went to school and paid good money for, i have to watch as we slowly go in debt, because of me, husband probably wont ever be able to retire, i coudnt even pay for my daughters college. as much as i love working outside, i cant even plant a flower right now.

    trying to look at the glass as half full all the time is hard, sorry guys. it's just one of those days;/
  19. SaveMe

    SaveMe *****

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    if you dont mind me asking do you share the symptoms I have (#17 comment)?
    I have only had this for a little over 1 and 1/2 years.
  20. kat0465

    kat0465 Senior Member

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    therea only 2 or 3 that i dont have, most of those complaint are quite common im afraid ;/

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