Discussion in 'General ME/CFS News' started by GodGenghis, Jan 11, 2017.
This is not going to end well.
Nath is not committed to building trust with patients. Very bad.
And Walitt is a liar. I can't recall the source but he made statements that were clearly meant to make us believe that he viewed this illness as biological. Then he goes on and invites the biggest proponent of the "mass hysteria silly non-illness" point of view.
Walitt shouldn't be anywhere near patients or the NIH. His involvement in the NIH's ME research is a disgrace, and a blatant insult to patients.
Great. Just great.
Disappointed, not surprised.
And the band plays on...
Just up the lane from me is the old hanging post.
It has vacancies..................
Just a reminder (from that post) of what we're dealing with in Shorter:
“What is required to convert these inchoate and nonspecific symptoms into an illness is an act of belief, a psychic epidemic, in other words. And my feeling as a historian is that this is what we are now dealing with in the ME/CFS movement.”
FFS, I was sick for 13 years before I knowingly had a conversation with another person with the same illness. For 12 years I thought I had what a doctor had called a post-viral condition and believed that it would wear off in time. I read zero about this or any other illness. I trusted my GP and left it at that. So how did I catch this psychic epidemic?
Shorter has an obsession with the "movement" — probably less than one per cent of people with the illness — and is unable to distinguish between someone with ME/CFS and someone who campaigns on ME/CFS.
I wasn't sure it was possible to know less than nothing about something until I came across Shorter. Why is the NIH even answering this man's calls, let alone inviting him in? He's a willfully ignorant menace. The quotations from him on that blog post alone should disqualify him from participation in any research.
It's from this post:
Wallitt's comment always seemed like he purposely planted it, to me.
Ok, so from what I remember from the student/patient that went to the meeting is she had a nice chat afterwards with I think Walitt, who reassured her about how they are viewing this disease. Turns out he was the one that invited the nutter. Can you get anymore two-faced than that?
So demoralizing. Wallit is no surprise, he hasn't made much effort to hide how he feels. But now we know exactly how Nath feels about ME/CFS patients. smh..
At the time, he said something along the lines of, "that must've been very difficult for you to hear."
To hear -- you know, because it challenges our belief systems, not because Shorter spews content that is self-serving, or ignorant, or illogical. It sounded like the use of a standard psychiatry technique : empathize and acknowledge the patient's emotions, but be cautious in order to avoid validating or committing to their (mistaken) worldview.
Somebody IS doing a FOI, right?
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