1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
August 8th - What is the one thing about suffering with severe ME that the world needs to know?
Andrew Gladman brings our coverage of the Understanding & Remembrance Day for Severe ME, airing the voice of patients ...
Discuss the article on the Forums.

Vote once for each of two ME orgs from anywhere to win £2000

Discussion in 'Fundraising' started by snowathlete, May 31, 2013.

  1. Bob

    Bob

    Messages:
    8,586
    Likes:
    11,503
    South of England
    In case helpful, here are various Facebook sites that I've come across (I'm not suggesting bombarding them with messages to vote, but I thought people might find them helpful, generally)...

    ME Research UK:
    https://www.facebook.com/MEResearchUK

    ME Association:
    https://www.facebook.com/pages/ME-Association/171411469583186

    Newcastle University ME/CFS research page:
    https://www.facebook.com/pages/ME-CFS-Research-Newcastle/526359017390431

    Invest in ME:
    https://www.facebook.com/groups/5804522506/

    CFIDS Association of America:
    https://www.facebook.com/CFIDSAssn

    National Centre for Neuroimmunology and Emerging Diseases (NCNED)
    Griffiths University, Australia (Professor Sonya Marshall-Gradisnik's team):
    https://www.facebook.com/pages/Nati...y-and-Emerging-Diseases-NCNED/301252900007181

    MEandYou
    https://www.facebook.com/MEYOU.no

    Voices from the Shadows:
    https://www.facebook.com/VoicesfromtheShadows

    I'm sure that there are plenty more!
     
    Sasha likes this.
  2. Sasha

    Sasha Fine, thank you

    Messages:
    8,440
    Likes:
    7,525
    UK
    Sasha, I just looked up Thing X, and guess what? The name is actually "Thing X"! o_O:)
    I don't understand what it's all about, but I don't think it's very big, and Facebook is massive.
    Nearly everyone in the UK seems to have a Facebook account.[/quote]


    Bob - what, seriously?!! I just made it up! That's a bit freaky. Maybe it's a term whose time has come! :)
     
  3. Bob

    Bob

    Messages:
    8,586
    Likes:
    11,503
    South of England

    lol, you made it up? :eek:

    (I thought maybe you just thought you were making it up, but had actually remembered it correctly!)

    So it's not the site you were thinking of then. I didn't think it looked very impressive.
     
  4. Sasha

    Sasha Fine, thank you

    Messages:
    8,440
    Likes:
    7,525
    UK

    Yes, I really did make it up - as far as I know - I've got absolutely no memory of having heard it and that's fairly common for me to use language like that to describe an unknown (Mr X, etc.).

    I didn't check out the site - I'll never have seen it anyway - I'm clueless about this stuff and always a good 10 years behind.
     
    Bob likes this.
  5. Sasha

    Sasha Fine, thank you

    Messages:
    8,440
    Likes:
    7,525
    UK
    Bumping... late evening here and hoping that our friends abroad will do a bit of voting! :)
     
  6. Sasha

    Sasha Fine, thank you

    Messages:
    8,440
    Likes:
    7,525
    UK
    Insomnia! :confused:

    A chance to give this a little bump...

    Have you voted yet? Told your friends about the freeee moneeeeyyyy...
     
  7. Battery Muncher

    Battery Muncher Senior Member

    Messages:
    213
    Likes:
    213
    Bump! :angel:
     
    Sasha likes this.

See more popular forum discussions.

Share This Page