A New Decade of ME Research: The 11th Invest in ME International ME Conference 2016
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Volunteers needed for effect of invalidation of illness belief in psychotherapy

Discussion in 'Active Clinical Studies' started by Griffin, Apr 18, 2014.

  1. Griffin


    London, UK
    I am seeking 3 volunteers to be interviewed for my MSc dissertation project at the University of Sheffield, UK.

    The Title of the project is:

    Effects of invalidation of illness belief in psychotherapy for people diagnosed with ME/CFS.

    The interviews will cover what it was like to have therapy when you didn't have the same ideas about your illness as the therapist's ideas, how you felt afterwards, and what is the ongoing results of this therapy for you, how has it left you feeling. The therapy might have been CBT at an NHS CFS clinic but does not have to have been, it might be some other form of psychotherapy within or outside the NHS.

    Ideally you should fulfil the following criteria:

    1. You must have a diagnosis of ME, CFS, ME/CFS or CFS/ME
    (referred to as ME/CFS in the project)

    2. The diagnosis of this illness should be at least 2 years ago.

    3. You must have had Psychotherapy or Counselling during which you felt that your therapist had a different view of your illness than the beliefs you have about it.

    4. The Therapy may have been specifically to address ME/CFS but need not have been; it may be that the topic came up during therapy for some other reason.

    5. The Therapy may have been Cognitive Behaviour Therapy (CBT) or it could be some other recognised form of psychotherapy or counselling.

    6. The Therapy should have ended not more than 2 years ago and at least 3 months ago.

    7. The Therapy should have lasted at least 6 weeks/sessions.

    8. You should be 25 years of age or over.

    9. You should be confident that the interview can be organised such that it will not be detrimental to your illness (see below).


    · You will be asked to sign a consent form agreeing that you have read, understand and accept the terms of the interviews.
    · Interviews will be by telephone and last between 30 minutes and 1 hour, to be arranged to fit in with any restrictions caused by your illness (eg. pacing etc).
    · Where necessary, the interview may be spread, in shorter chunks, over more than one day to alleviate any negative effects on your health. This can be arranged before-hand or as necessary.
    · If you find any of the discussion distressing, breaks will be provided.
    · Strict confidentiality will apply, with use of pseudonyms in all written material.

    Full details will be supplied for you to consent, if you volunteer.

    What To Do Next:

    If you are interested in volunteering, please send me a private message indicating your interest and/or that you would like to be considered. If you are interested but do not fit all the criteria, message me with details as you may still be eligible.

    Applications should not be made in this thread. This is to protect your confidentiality.


    Many of your questions will be addressed in the material which I will send to you if you send me a message to indicate your interest in applying. There is a full information sheet that you will be sent.

    Indicating you are interested by private message will not constitute an application; this will happen at the point you send me a completed consent form.
    Last edited: Apr 19, 2014
    Valentijn and peggy-sue like this.
  2. Valentijn

    Valentijn Activity Level: 3

    Amersfoort, Netherlands
    @Griffin - do you want UK patients only?
  3. Griffin


    London, UK
    I'd prefer UK because the interviews are planned as telephone interviews and non-UK will cost. But in theory there's no reason why not, and perhaps it can be done by Skype.
    Last edited: Apr 19, 2014
  4. peggy-sue


    I don't fit your entry criteria, or I would happily volunteer.
    Griffin likes this.
  5. Esther12

    Esther12 Senior Member

    Was just talking to someone who made me think of this thread. Is there an e-mail address I could pass on to them?
  6. Griffin


    London, UK

    Yes, I can email them the post above with the criteria if they get in touch. I'll private message you.

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