I would not say the people affected don't matter. I can't believe that. There might be some people who don't care much, but there must be others as well and i would even think that they are the majority. But maybe they don't know enough or are have a wrong impression because they have heard too much biased information? I think organisations must try to better reach out to politicians and present them this kind of evidence. Top quality sientists who say things they way they are. If people at the CDC or similar institutions don't care probably one would have to try to reach people higher up. In the government or in parliament. And i guess we would have to be more present in the public space. I know that's hard to do, but i believe it's possible. It's possible for me, to some degree, and then it must be possible for others too. I know for some people it's impossible to leave the house, but in these many hundreds of thousands or millions that have the illness there are many who can do something. If officials really don't want to help us, i think we need large demonstrations/events. I say events, because where there is interest in us and goodwill there is no need for us to be confrontational. So we could just be there and seek contact with the public, explain the situation, distribute material, sell things, etc. Our powers are very much limited, but still i think we need to try to be more present. So that people outside of our community also learn all these things that many of us and these researchers like Montoya know. I was pretty overloaded for some time now, so it stresses me to even say these things, because it will be tough to organise, but i believe this is what needs to happen.