Dr. Bateman answers IOM questions from the community: Part 2
Clark Ellis brings us Part 2 of an interview with Dr. Lucinda Bateman, where she answered questions posed by the patient community …
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Vitamin D and Increase in Symptoms

Discussion in 'General Treatment' started by TheMoonIsBlue, Mar 9, 2011.

  1. healing1


    Thank you RLC, I will gladly post the units. If it makes it any easier I have also attached the lab results. Calcium is mg/dl and PTH is pg/ml and vitamin D is ng/ml. If you would like any other information I will gladly provide it.

  2. rlc

    rlc Senior Member

    Hi healing1, your Urinalysis results are interesting, you have a high specific gravity, and this means that your urine was more concentrated then normal on that day. See http://labtestsonline.org/understanding/analytes/urinalysis/ui-exams/start/1

    You have high RBC in your urinalysis, this test should be repeated to see if it is always present, this is a possible concern to talk to a doctor about see http://www.nlm.nih.gov/medlineplus/ency/article/003582.htm

    There is also mucus in your urine, there shouldn’t be, see http://ic.steadyhealth.com/mucus_in_urine.html

    So from what I understand from my reading is these test indicate a problem somewhere from your kidneys through to your urinary track

    Your calcium was certainly high on the blood test, but PTH was on the lower side of normal. Blood Calcium should be retested, to make sure.

    From my understanding the second batch of tests containing calcium results in a Urine tests? If so the Calcium is high normal, but comparing urine Calcium and Blood calcium is like comparing apples and oranges they are very different tests. The blood calcium result is the one that matters!

    The test that matters for Vitamin D is the 25 (oh) D3 blood test, at 32 NG/ML it is just OK any lower and it is heading into the deficiency area.

    My opinion and remember I’m not a doctor, this is just what I have read from the links I have provided, is that these tests indicate that your problem is somewhere in the Kidney, prostate urinary track area, a high Calcium may also fit with this because, it can be a sign of some Kidney disorders. Vitamin D increases the body’s uptake of Calcium, so taking it might be aggravating the existing condition??

    My opinion would be to see your Doctor get the relevant tests redone, and get tests for kidney and urinary track etc done, then if no real answers are found see a Kidney or urology specialists.

    None of your failed tests are specific to CFS, in fact you are not supposed to fail these kinds of basic tests if you have CFS, they are a sign of something else going on.

    Hope this helps, and your doctor can track down the cause of your problems soon!

    All the best
  3. undcvr

    undcvr Senior Member

    I take alot of vit D particularly in the winter. I do agree that it has an immunomodulating effect. In the winter I notice that all sort of autoimmune skin conditions crop up for me, psoriasis, dermatisis, lots of issues that i am sure other pple with ME get as well. I feel that high doses of vit D help during these months.
  4. Marnie


    I believe a "herx" is an increase in histamine. Some persons have a genetic problem with histamine (example: asthmatics have less HNMT - one of two enzymes to break down histamine (other is Cu-DAO which works primarily to breakdown histamine in foods - those we all love). Okay...it appears some pathogens - esp. the cyanobacteria that rely on photosynthesis use up OUR vitamin D. Doubt?
    Find this Pubmed link:
    Picture of synechococcus phage here:

  5. Frax2015


    Just thought I would make a contribution to this thread as I have also experienced side effects from taking Vitamin D3. I could only take it for about 2 days before I experienced severe anxiety and depression and just generally feeling a bit rubbish and increased thirst and urination, also experienced hair loss (patches of alopecia) from taking D3. I tried taking it with various forms of magnesium but this didn't help ( I was already taking Magnesium before I first started taking Vitamin D anyway).
    Recently I decided to start supplementing with Pantothenic Acid (vitamin B5) just to help me cope when I get a bit stressed at work. Whilst I was researching B5 I found various websites stating that B5 is needed to metabolise Vitamin D and other fats and fat soluble vitamins. It also helps to make Vitamin D from sunlight as well as aid in the synthesis of other steroid hormones from fats and cholesterol.
    Having read this and been on B5 for about a week I decided to try Vitamin D3 again after numerous attempts within the last 2-3 years. I've been taking B5 for the past 2 weeks and I restarted D3 1 week ago and I have had no issues with anxiety or depression at all, in fact I've had the complete opposite, very balanced and good mood and good energy and concentration. I think this is mainly from the B5 but it could also be the D3, I just find it odd that I no longer have anxiety or depression from taking D3, could be that the B5 is helping me utilise it without loads of free potentially unutilised D3 floating around in my system.

    Just thought it was worth mentioning for those struggling with Vitamin D3

    Edit: I take 500mg of Pantothenic Acid twice daily, I also take a B- complex every other day with some extra Biotin as B5 can deplete Biotin (they are absorbed at the same site in the intestines)
    Last edited: Apr 27, 2015
  6. lilieslulz


    Stumbled onto this post while searching for a reason that I was so sick taking vitamin D3. I have criminally low levels of D, definitely deficient and *need* it----but I've been on the verge of tears taking the supplements because I was in *more* pain, irritable, upset etc. Can I ask how much D3 you were taking?

    And thank you so much for posting that. I had a B complex sublingual here that contains trace B5 and already I feel a little better. I've been reading that B5 can cause hair loss in high doses but L-cysteine seems to help avoid that. Still trying to learn more. If I can feel better finally I would be so happy. Thank you for giving me a place to start.
  7. Frax2015


    Hi lilieslulz,

    No problem, I'm glad I can be of help.

    I was only taking 1000 IU twice daily sometimes only once daily, I still only take this much but before I started taking B5 just this much was enough to make me anxious and depressed.

    A B-complex is fine and contains at least the RDA for B5 but you may getter even better results by taking a higher dose of B5 on it's own. I think as long as you don't over do it with the B5 hair loss shouldn't be anything to worry about. And as long as you balance it with the other B's especially with some biotin every now and then you should be fine. I have read that B5 works with Cysteine in the body but you can make your own Cysteine from other amino acids I believe. I've been on B5 for about 3 weeks now and I haven't had any issues with hair loss (touch wood).

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