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Virtual Space: Creating a Place for Social Support in Second Life (ME/CFS)

Discussion in 'Latest ME/CFS Research' started by Bob, Feb 3, 2014.

  1. Bob

    Bob

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    Virtual Space: Creating a Place for Social Support in Second Life
    Kirsty Best & Stephanie Butler
    Space and Culture January 30, 2014 1206331213512235
    Published online before print January 30, 2014
    doi: 10.1177/1206331213512235

    http://sac.sagepub.com/content/early/2014/01/28/1206331213512235.abstract

     
    carolwxyz99, Valentijn, justy and 2 others like this.
  2. Bob

    Bob

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    An unusual research paper!
     
  3. alex3619

    alex3619 Senior Member

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    This was the study I was enrolled in. I just left second life in fact, minutes ago. Now I gotta go read it!

    PS Doh, paywall!
     
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  4. justy

    justy Senior Member

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    I really like the idea of using 2nd life for meeting upo with other PWME, but feel overwhelmed with the idea of trying to figure it all out. Perhaps a post/article by someone who is familiar with it would be a good idea? I feel so isolated where I am and don't know anyone in my area with M.E.
     
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  5. Bob

    Bob

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    Good idea. It would be quite complicated to write an article on it, but it would be worth it.
     
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  6. alex3619

    alex3619 Senior Member

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    There is an entire section of second life devoted to instructing those with disabilities, called Virtual Ability Island. It has detailed tutorials, and at one point a bell you could ring to get help from volunteers. I haven't been there in years though.

    If you have ever played a 3D character based computer game then second life is easy.

    Installing second life is easy. Go to secondlife.com and download, then install.

    Troubleshooting sound issues can be hard, if you want to speak. You also need headphones if you want to listen and speak, as speakers will cause feedback when your mic is on. We have someone in the support group who is very good at troubleshooting sound issues, and there is also a meditation group.

    Second life can be like holidaying without leaving home, if you ever want to explore. There are even underwater gardens. Some of us go to virtual clubs, but I find it too exhausting. One of us is a virtual DJ at some clubs. Some areas are best avoided, and most of these have an R rating which you cannot go to unless you set permissions that way.

    Light/visual issues can be a problem. Some cannot handle the graphics. This is aided by setting the time of day to midnight, so there is no sun, and leaving it there.

    Very old computers might not run it. It also requires broadband or faster internet speeds.

    There are lots of members of the ME/CFS group there. Most will be willing to assist anyone who wants to come along.

    Mostly we run it just like a chat, as many cannot handle sound and you can always go back and reread chat, but you can't do that if you miss a voice message.

    There are events too, including Xmas dances and often something for May 12. There is also an art gallery with exhibits from people with ME or CFS, plus a few information sources but I don't know all the refinements as we moved to a new venue last year, and I don't know what the builders made.

    If you see a guy with a small fire breathing dragon on his right shoulder, and a tiny ghostly dragon on his left shoulder, that's my avatar. People can look and dress how they want (but clothing is not optional except for R rated areas) and one of our current members is a giant gryphon, another is a tree person.

    There is a facebook page on the ME/CFS group here: https://www.facebook.com/ME.CFS/info
     
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  7. Esther12

    Esther12 Senior Member

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    Stuff like second life scares me...

    I had a mate who got far too sucked in to World of Warcraft. They were healthy, but spent less time out of the house than I did. I think they eventually broke free... but they lost a few years to it.

    'Socialising' on-line is a weird thing, and I'm not sure how truly satisfying it can be. I never really liked chatting on the phone either though, so maybe I'm just less into the sort of socialising which is practical for the poorly.
     
  8. Christopher

    Christopher Senior Member

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    How about virtual antiretrovirals?
     
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  9. alex3619

    alex3619 Senior Member

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    Well, my avatar has no signs of ME unless I speak through him and my brain goes AWOL. Heck, he can even fly. So maybe there really are virtual antiretrovirals? ;)
     
  10. rosie26

    rosie26 Senior Member

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    Is it free to download ? Where does it download to in my computer - somewhere similar to my pictures, music section ?
     
  11. Bob

    Bob

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    It is free to download, and it downloads it to your usual browser download folder.
    If you can't see it then search your computer for "Second_Life".
    The file name will be something like: "Second_Life_3_6_13_284995_i686_Setup"

    I'm shortly going to post some comprehensive instructions for getting started.
     
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  12. Bob

    Bob

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  13. justy

    justy Senior Member

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    @Bob thanks!

    I had a quick loo over at second life yesterday and it looks way too complicated and technical for my brain!! I will read the links anyway and maybe save it for a summer project - i'm currently studying and I cant cope with any more brain output!
     
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  14. carolwxyz99

    carolwxyz99 Senior Member

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    Last edited: Feb 26, 2014
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