1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
Discuss the article on the Forums.

Video interview Prof. De Meirleir and Dr. Byron Hyde November 09

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by Frank, Feb 13, 2010.

  1. Koan

    Koan Be the change.

    Thanks much for this, Frank!

    So far, I have only watched the first few minutes of Hyde. I just wanted to say that his observations of the illness feel so spot on! He has obviously been paying close attention to his patients. It felt so right that it almost made me weep. Being heard and seen is powerful stuff!
  2. oerganix

    oerganix Senior Member

    Yes, you are so right; being heard and seen is powerful and I did let a tear of gratitude escape while watching the deMeirleir video. I cheered outloud when he said there are too many docs saying this illness is all between the ears. Yes, he said, much of it is between the ears and he had already spoken of the brain abnormalities, so we know he doesn't mean what the denialists mean when they say that.

    These videos are one antidote for the negative-seeming report coming out of UK today. See also the blog: http://cfs-facts.blogspot.com/2010/02/xmrv-discussion-on-faculty-of-1000.html There are several refreshing comments from docs that indicate they actually "get it". Sprinkled in are the usual negative responses, but the well-reasoned responses greatly outshine the negative.

    I also appreciated your Taoist tale in another thread. Good to be reminded of the value of neutrality in the face of the 'roller coaster ride' we are on right now. My inner farmer is feeling good today, regardless of the 'bad' news. I've started LDN and am feeling hopeful. Happy Chinese New Year to everyone, too.

See more popular forum discussions.

Share This Page