Discussion in 'Latest ME/CFS Research' started by GodGenghis, Jan 18, 2017.
This guy is a good communicator. The wonderful folk at OMF could take a leaf out of his book and really try to emphasise the O in OMF.
I really like this open approach. Great to see how active they are.
I agree that Jarred does come across well on camera.
Personally I think that the O in OMF is intended to refer to the data, rather than increased interaction with the patient base. However, I'd also argue that compared to the vast majority of researchers, that Ron and Janet do a pretty good job in interacting with the patients, especially considering their insane workload. We also have @Ben Howell here as PR patient liaison, if you want to know more from the OMF perhaps have a chat with him.
Very good - he's promising video updates every couple of weeks during 2017, which is good.
I just did another MRI for them Tuesday night. His entire team is really wonderful to work with.
With connective tissue disorders and pain from between the shoulders up to the back of the head being common with ME and their association with CSF leaks, is it possible that infection and or peripheral immune cells that Younger mentions, could enter the CSF, vagus or brain nerve via perforations in the dura rather than through the blood brain barrier?
Do you live in his area? Are they purely research at the moment?
You can also try a Google Site Search
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