Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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VIDEO: 2017 Resolutions - ME/CFS & FM Researcher Jarred Younger - UAB

Discussion in 'Latest ME/CFS Research' started by GodGenghis, Jan 18, 2017.

  1. GodGenghis

    GodGenghis

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    Last edited: Jan 19, 2017
    ljimbo423, Sushi, CJB and 12 others like this.
  2. Murph

    Murph :)

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    This guy is a good communicator. The wonderful folk at OMF could take a leaf out of his book and really try to emphasise the O in OMF.
     
    trishrhymes likes this.
  3. trishrhymes

    trishrhymes Senior Member

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    I really like this open approach. Great to see how active they are.
     
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  4. AndyPR

    AndyPR Senior Member

    I agree that Jarred does come across well on camera.

    Personally I think that the O in OMF is intended to refer to the data, rather than increased interaction with the patient base. However, I'd also argue that compared to the vast majority of researchers, that Ron and Janet do a pretty good job in interacting with the patients, especially considering their insane workload. We also have @Ben Howell here as PR patient liaison, if you want to know more from the OMF perhaps have a chat with him.
     
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  5. Sasha

    Sasha Fine, thank you

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    Very good - he's promising video updates every couple of weeks during 2017, which is good.
     
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  6. temple88

    temple88

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    I just did another MRI for them Tuesday night. His entire team is really wonderful to work with.
     
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  7. AndyH

    AndyH

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    With connective tissue disorders and pain from between the shoulders up to the back of the head being common with ME and their association with CSF leaks, is it possible that infection and or peripheral immune cells that Younger mentions, could enter the CSF, vagus or brain nerve via perforations in the dura rather than through the blood brain barrier?
     
    Last edited: Mar 4, 2017
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  8. Belbyr

    Belbyr

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    Do you live in his area? Are they purely research at the moment?
     

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