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Very sick on LDN, what to do?

Discussion in 'General Treatment' started by Vincent, Dec 5, 2013.

  1. Kiwi Jack

    Kiwi Jack

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    Canada
    JES, what effect has LDN had for you?
     
  2. JES

    JES Senior Member

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    For me the only obvious long-term effect has been improved quality of sleep, also perhaps slightly reduced fatigue and less nerve pain – a related condition I have. I think LDN can be particularly useful if you have some related autoimmune disease to CFS or chronic inflammation type symptoms of an overactive immune response, as LDN has been shown to reduce inflammation in some brain immune cells (microglia).
     
    Horse Crazy likes this.
  3. Horse Crazy

    Horse Crazy

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    Raleigh, NC
    I am so glad this thread is here! I just tried for the first time 1.5 mg LDN at night for 3 nights. On the third night had bad flu like symptoms, headache, nausea, felt even sicker every time I ate something. For the most part have been in bed for the last three days. It has been four days since the last dose and I still don't feel right (meaning right back to my "normal" CFS feeling), although I am better. I will let everything completely clear and try again at maybe 1/5th of that dose in a month or so. Thanks for sharing.
     
    Sparrowhawk likes this.
  4. Iamlaura

    Iamlaura

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    My Dr started me on 3mg and I am a 120 pound female. The first night was intense. I felt like I was tripping and had bad insomnia. The second night I slept like a baby, the third night insomnia again and now I am on day 6. I feel slightly sick and definitely don't feel like myself during the day... I wish I could lower my dose but I have capsules and it's not easy.
     
  5. Misfit Toy

    Misfit Toy Senior Member

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    Yes, sweating. I have had the sweating and the worst pain. Pain all over. I am on the smallest dose. Smaller than the initial dose. Each dose change or switch, I have totally different symptoms.
     
  6. Mireille2701

    Mireille2701

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    Can you please tell me how long you felt sick? I quit after using 1 week 1mg at night.i'm sick now for 9 days.seems like all sorts of neurological symptoms.can hardly swallow,no strength in arms,extremely tired,hard to eat,all muscles cramp if i want to use them.strange taste in my mouth.can please some one help ne?my doctor hasn't got a clew.do i need blood research?it begins to scare me now.
     
  7. Mireille2701

    Mireille2701

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    @Sushi what kind of symptoms fo you have? Raising your dose?
     

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