Discussion in 'Action Alerts and Advocacy' started by Frank, Jun 15, 2010.
Just sent out:
916 votes when E-mail came in from ME/CFS Emergency Action List
But you are probably right. If people like us who are pushing are to be able to relax on the last day, PANDORA need to be that far ahead (although it might need to be more to be able to relax!).
I almost certainly won't be on the internet so I won't be worrying too much if I should be doing more!
I don't have a facebook account... but know someone else's password!! Bwah-ha-ha-hah!
I probably shouldn't also send it to all of their friends though. Thanks for letting me know about this - the fact that the mailing list is rarely used means I tend to do what it says, rather than the ones which send out all the time and just get ignored.
Since the last update,
PANDORA have moved up 5 places to 109th.
Gap is now 151 (18 further away :Retro smile: ):
PANDORA: 954 (up 64 - big jump - well done Frank and everyone)
200th position: 803
However, I'm still not confident. A lot of effort was put into the last 12 hours or so for PANDORA.
The base level of 200th went up by 46 and I think there will need to be a lot of work to get PANDORA close to that amount each time. If you look back, PANDORA has only been going up by much smaller amounts than 46 in recent times apart from the latest.
Its great that you know the password of someone. if I can ask you make also your own facebook account. Maybe you will not use it but there are always CFS actions like this where you need to have facebook. I dont use it neither - just in the case like this. it takes maybe 5 minutes to have it. Like this you could earn for us also 4 votes. If you vote for 5 organisations you get one gift vote which you can send to someone else and he can send you one gift vote back (normally you have 20 votes but you can vote for one organisation only once and once with gift vote). so please if you can do it - do it, there are still some more days and we will need every vote - some strong organisation come every day from behind and we can easily lose the top 200.
if you need some instractions here is a short video:
Gap with the 200th place is now 116 (35 closer)
I am going to vote later today or tomorrow (I still have to set up a facebook account as well). If you like, you can give me your gift vote and I will give you mine.
PANDORA is really struggeling now, I'm collecting 10 votes a day, where are you people?
Sounds good Lynn.
How are you getting 10 votes a day Frank? You mean from other people?
Esther I PMed you.
PANDORA have dropped 8 places to 126th.
Gap is now 103 (13 closer)
200th position: 912
It's going to be close. That was a good half-day for PANDORA. The base score (200th) continues to go up a lot.
I just joined Facebook so that I could vote. It was not as difficult as I thought it would be (I skipped all the information about me). Once I was a member, I used the link http://apps.facebook.com/chasecommunitygiving/charities/550795076-patient-alliance-neuroendocrineimmu-disorders-org-for-resech-amp-adv-inc to vote for PANDORA.
It was also easy to copy and paste the other organizations into the search and then vote. I am going to list them below again because there were a few typos which I corrected. Thank you to Beesknees for originally compiled these. It would be great if Cort could list them on the explanation page because it makes it so easy. It probably took a total of ten minutes out of my day to vote for twenty. I hope everyone does this in the next few days.
i have one gift vote to share. lynn do you want still send yours? we can do it together if you want
the last day we lost compare to the 200 th place 40 votes. Now the gap is 103 votes. The dead line is in 4 days and 5 hours. If it will continue like this we will not manage it. so please everyone who can do it try to get more votes. its possible - I ennoyed my friends and I got at least 20 points. This 20 000 dollars are really important for PANDORA. Its 95 % of their budget for 1 year - they could doubled their activities.
(Probably my last update)
PANDORA have gone up 13 places to 113th. :Retro smile:
Gap is now 174
PANDORA: 1079 (61 further away! :Retro smile: )
200th position: 905 (this is a decrease of 7 (was 912) - it could be an error 198th is 933).
I've sent you a gift vote Lynn.
OT: Does anyone else think that this is a crazy way for money to be handed out? Any little organisation could potentially get $20,000 for having a rather small number of facebook votes. Surely loads of nutty religious sects or underground cults should be taking advantage of this? If 4chan got hold on to this the top charities would all be utterly bizarre - (maybe we should ask them to fix it for CFS ones?)
esther, i dont like it neither. a lot of good organisations are fighting about money. especially when the rules are not 100 % good and there are so many possibilities how to cheat. but do we have another possibility? with such a small financial support of CFS we have to take every possibility. if you hear that maybe one of the biggest CFS support institution PANDORA has yearly budget around 20 - 25 000 dollars - you would like to cry. the situation is really bad and what can they do with such a small budget? hopefully, they will get this grant and then they can doppelt their activities.
When you see how many charities for pets are at the top of the list, it can't help but make you think that facebook members should not be consulted for things like this.
Thanks to all the people who've been working on this for CFS.
Thank god there are not lots of "Facebook Appreciation"-type charities or something similar or they'd be up there as well!
I've talked to some people and to them Facebook is the internet. I prefer specialist forums like this myself where more indepth discussions tend to occur.
You can also try a Google Site Search
Separate names with a comma.