Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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Very good Huffpost article

Discussion in 'General ME/CFS Discussion' started by Snowdrop, Aug 17, 2016.

  1. Snowdrop

    Snowdrop Rebel without a biscuit

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    I can't remember all articles that have gone by so don't recall if there have been some bad press from Huffpost but I think in general they have been a friend to the ME community.

    See article here: http://goo.gl/RrNUl9

    Article title: The Faces of ME: Missing 7 years of my life

    Quote from the article:

    Generally, when I talk to people about Lilan and ME/CFS, they want to change the subject. I get it. It’s taken me an entire year to write this article – and it’s not just because it’s difficult to connect with Lilan due to her illness or because I’ve had other projects.

    There is another reason.

    Researching this disease is difficult. I read about a patient’s suffering, watch a documentary, or scan a research article, and I have to step away. I feel overwhelmingly sad. And worried. I start to worry that every little ache, pain, or bout of fatigue is a sign that I, too, will stumble into a darkened room, never to reemerge. While that may seem ridiculous, I know the truth: No one is immune. As Lilan recently wrote on her Tumblr page (after more than a year’s absence):

    I did not know, so many years ago, what it means to watch the pieces of yourself get shaved away, the so-you-you-always-took-them-for-granted pieces, the closer-and-closer-to-the-core-pieces.

    The loss is immeasurable.

    And I am afraid.
     
    Last edited: Aug 18, 2016
  2. taniaaust1

    taniaaust1 Senior Member

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    Sth Australia
    Excellent accurate article. Well worth a read.

    10/10 to the one who wrote it.
     
    Sidereal, Comet, Mary and 5 others like this.
  3. Esther12

    Esther12 Senior Member

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    Any article that describes PACE as "seriously flawed" gets a minimum of 9/10 from me.
     
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  4. Snowdrop

    Snowdrop Rebel without a biscuit

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    Yes, I sent the author a thank you by twitter which she acknowledged she said she hopes to write more in future.
     
  5. Kinesis

    Kinesis

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  6. sarah darwins

    sarah darwins I told you I was ill

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    Definitely so. Lately the Huffington Post seems to have gone out of its way to publish strong articles about ME.
     
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  7. Bob

    Bob

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    Esther12, Comet, Mary and 5 others like this.
  8. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

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    Toronto, Canada
    Screen Shot 2016-08-18 at 9.48.07 AM.png

    Supporting our supporters.
     
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  9. Snowdrop

    Snowdrop Rebel without a biscuit

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    Yes, thanks @Bob I think I'll bookmark it too to find it back for reference but it's always good to use titles for threads that help in a search. . . next time!

    And I'll add it to the OP as well
     
    belize44, Bob and Kinesis like this.

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