vertigo supersized I was at first, very dizzy, had trouble balancing. Later, I discovered what I had never known, that vertigo comes in more than one flavor. I had no idea that I could feel as if I were spinning three directions at once, literally in a neurological washing machine. It was constant, nonstop for months. From my bed I thought about death. I knew for a fact I could not sustain life that way. I was way past scared. I was dispassionate about it, as anyone is when in great extremity. I needed it to stop no matter what it took. Then I found some try-anything-and-get-'em-out-of-here 'cowboy' ER docs who put me on Klonopin. That slowly took the edge off, and righted the world a bit. Over time something must have healed a little as it is seldom that I have true vertigo, now. Mostly dizzy...still on klonopin, thought. And I do an odd thing which is that I automatically hold out my arm, and run my hand along the wall when walking down a hallway..so I don't bump into it, I guess. I would certainly fail a sobriety test. My story is very long and complex. Most of the things I have found that help me I've found by accident. At one point I did find a doctor into boutique medicine to treat me. He gave me low dose cortef and pharmacy compounded DHEA. That combined with cleocin IVs and oral antib's gave me a very small part of my desire to live back. I was by no means well, but I suffered a great deal less. Doc then dumped all his Medicare clients...I may have told you that. So I became doctorless because it seems no one wants a CFIDS patient without money. Eventually I found a desperate newbie in town who was beginning his practice, he took me on and two years ago dc'd the cortef and the DHEA. I am now back to bedridden and the vertigo is returning though not with a vengeance. It is enough to make me take 'back' streets when I drive and I avoid driving because of the vertigo. I too am surprised at how few who suffer CFIDS mention vertigo. Augh..too tired to even find a comma on my keyboard or figure out where this post even ends. Yeah...vertigo.