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Venus Williams Dx with Sjogren's

Discussion in 'General ME/CFS News' started by Vanguard, Aug 31, 2011.

  1. Vanguard

    Vanguard

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  2. mellster

    mellster Marco

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    San Francisco
    Just saw it in the ticker while watching Roddick vs Russell - remembering my tournament playing times as a kid back in Europe ;) Too bad for her. I think overtraining could possibly exascerbate/trigger predispositions like these, hopefully she can deal with it somehow and still perform for a while.
     
  3. beaker

    beaker CFS/ME 1986

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    USA
    As a tennis fan and an admirer of the sisters Williams, I was very sad to see this news.

    I must confess, however, that my mind automatically thought : What a boost this is for those w/ Sjogren's and if she had to have something .....<sigh>


    For the record, I really wouldn't wish this on anyone.
     
  4. ixchelkali

    ixchelkali Senior Member

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    Long Beach, CA
    This is such sad news. Sad when anyone gets it, perhaps sadder when it's someone whose livelihood and passion depend on peak physical fitness. And if you follow tennis at all, it's like hearing it about someone you know.

    But what's with this UCLA rheumatologist that ESPN quoted? "Fitzgerald is not involved in treating Williams and does not know her symptoms or medical history. But, he said, if Williams has the typical symptoms, 'it does not seem life-threatening or career-ending.'" Huh? That doesn't sound like the same disease that's described on the patient forums. And she's already getting fatigue and joint pain. Sjogren's is more than just dry eyes and mouth. Grr. Do these doctors ever actually listen to their patients or do they just parrot what they read in a textbook? He makes it sound like she's a wimp if it affects her game.

    Tennis Grandstand had a better description of the disease: http://www.tennisgrandstand.com/archives/10380.
     
  5. Tony Mach

    Tony Mach Show me the evidence.

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    Upper Palatinate, Bavaria
    She had a viral infection in August during the "Rogers Cup" and had to drop out of the tournament. She has tried to reenter the Tennis sport but had problems with fatigue and joint pain (as far as I know).

    From my point of view: she caught some virus, which triggered (caused?) Sjgren's.

    What I find amazing how fast she was diagnosed with Sjgren's. Well, she is a top-athlete and I guess they were franticly trying to find out what is wrong with her. But never the less, how fast was that? Three weeks? How many other tests did they do? And which ones? Who here went to her/his doctor about fatigue and joint-pain and got test for Sjrgen's?

    Edit:
    In comments to the press, Ms. Williams expressed disappointment at being unable to compete because of severe fatigue and pain, but gratitude for recently receiving a diagnosis of Sjgrens syndrome that explained symptoms she had been feeling for some time, said Ms. Dowd. Unfortunately, her experience is not uncommon; proper diagnosis can take years.

    So I guess she had problems with fatigue and pain before, but it seems the viral infection completely knocked her over.
     
  6. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    Or does she really have M.E. and it's too socially unacceptable to admit that so calls it something else?
    As others have, by the way.
    M.E., the new social disease!
    sigh
     
  7. urbantravels

    urbantravels disjecta membra

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    It also seems possible that what she and others identified as a "viral infection" was really a flare-up of symptoms, since there is no statement here that she was actually tested for a virus and that a specific virus was found. Most of the time when people have symptoms of a "viral infection" the assumption is made that it's a viral infection without further testing.

    As for ruling out Sjogren's on the way to an ME/CFS diagnosis, I certainly had the ANA panel done with the standard rheumatology workup, and rheumatology was the first specialty I was referred to when my symptoms set in.
     
  8. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    australia (brisbane)
    it is sad to hear someone losing their peak performance, but with all her money should just walk into any cfs guru and get put on ampligen and other antivirals etc and get sorted very quickly and not have to take years like many of us to find a good cfs doc, plus 99% of us will never get near ampligen and such treatments. Wouldnt that be a good recommendation if she went on ampligen and improved and went back and won wimbledon, might help ampligen approval or interest anyway.

    cheers!!!
     

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