1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
New Exercise Study Brings Both Illumination and Questions
Simon McGrath looks at new objective evidence of abnormal response to exercise in ME/CFS patients, and the questions that researchers are still trying to answer ...
Discuss the article on the Forums.

Vasoactive Intestinal Polypeptide (VIP) in Ottawa.

Discussion in 'General Treatment' started by Rita, Oct 15, 2011.

  1. Rita

    Rita Senior Member

    Messages:
    235
    Likes:
    5
    http://www.iacfsme.org/LinkClick.aspx?fileticket=EFIrm+uCnkM=&tabid=142

    In page 46 is an interesting work of Shoemaker with VIP .
    They had a symptom reduction in all patients with not adverse effects.
    The VIP was administered intranasally four times a day.
    "Treatmet with VPI restored clinical functioning in a cohort of patients with severe CFS illnes".
    I dont know if this is a very expensive treatment,but I hope can be a good treatment in the future.
  2. Tristen

    Tristen Senior Member

    Messages:
    613
    Likes:
    421
    Northern Ca. USA
    Hi Rita, there is an old thread somewhere on this. I last asked if anyone knew how to get hold of this drug in the US. No response yet, but I am very interested because my labs show undetectable VIP. That's lower than low. VIP is some kind of master hormone involved in several critical functions. I hope people chime it on this one more. Thanks for posting.
  3. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

    Messages:
    4,031
    Likes:
    882
    Concord, NH
    I think this place makes it Hopkinton Drug (in Mass.).

    http://rxandhealth.com/

    GG

    PS Perhaps you can give them a call and ask who prescribes?

    PSS If you pay out of pocket, i think it can cost $200/month, and it needs to be refrigerated. (If my memory serves me correctly.)
  4. Rita

    Rita Senior Member

    Messages:
    235
    Likes:
    5
  5. SpecialK82

    SpecialK82 Senior Member

    Messages:
    885
    Likes:
    465
    USA
    I'm interested in this too..
  6. mellster

    mellster Marco

    Messages:
    799
    Likes:
    178
    San Francisco
    Me too, seems to have good gastric effects.
  7. Tristen

    Tristen Senior Member

    Messages:
    613
    Likes:
    421
    Northern Ca. USA
    Thanks gg, I called and spoke with the compounding pharmacist at Hopkinton today. They do compound Aviptadil, but only for people involved in the Shoemaker protocol. I asked him if my doctor could order it based on labs showing undetectable VIP, and he said only if my doctor was following the Shoemaker protocol. It is about $200.00/month.

    I find it very odd that a pharmacy would be doing this (shoemaker protocol only). Anyone else have information on this? And isn't the Shoemaker protocol basically Mold Tx and involve some other very heavy meds?

See more popular forum discussions.

Share This Page