August 8th, 2016: Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis
Jody Smith joins with other ME voices in honor of Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis.
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Van der Meer strikes again

Discussion in 'XMRV Research and Replication Studies' started by Rivotril, May 7, 2010.

  1. Michelle

    Michelle Decennial ME/CFS patient

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    Portland, OR
    Parvo -

    Is this your text from "Visitors" on down? Because it's freakin BRILLIANT! After reading today the CAAs Virtual Lobby Day Action #1 in which we should "Direct [local media outlets] to information resources and ask them to bring greater understanding to the public...Tell your story as an inspiration to reporters to cover the issue," all I could think was, there is nothing fucking inspirational about this disease! I'm tired of trying to get people's pity. We need their anger. We need them to realize that THEY can get this disease (and, indeed, some WILL get it).

    Would you mind if I used your summary in my ME Awareness Day post on my blog? I'll send you a copy before I post it. :)
     

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