1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Can You Come for a Visit? My ME/CFS Says No
My daughter and son-in-law just had a baby last week. We are thrilled. But we won't be able to see the baby or hold her any time soon. We won't be able to take over little gifts or help out with housework or babysitting.
Discuss the article on the Forums.

Valcyte (plus) Update

Discussion in 'Antivirals, Antibiotics and Immune Modulators' started by SOC, Aug 4, 2010.

  1. Butydoc

    Butydoc President

    Messages:
    112
    Likes:
    348
    SOC, Have you used any anti-inflammatory drugs while on Valcyte.
    Dr. Montoya now uses anti-inflammatory on his patients. He feels the inflammatory component of the disease is damaging and needs to be addressed. I started on both Valcyte and colchine almost 10 mo ago with slow continued progress. He claims he has seen impressive results with this combination.

    Gary
     
    aimossy likes this.
  2. Jenny

    Jenny Senior Member

    Messages:
    1,233
    Likes:
    200
    London
    Hi
    Hi Gary

    Can I ask - what is colchine? Nothing comes up when I Google it.
     
    vli likes this.
  3. SOC

    SOC Senior Member

    Messages:
    5,364
    Likes:
    6,445
    USA
    No, we had no anti-inflammatory drugs while on Valcyte. Now we take the standard anti-inflammatory combo Drs Rey and Klimas recommend -- fish oil, vitamin C, coq10, and.... um.... something else. :confused:

    I have to agree that the inflammation we're dealing with is a big problem.
     
  4. Ema

    Ema Senior Member

    Messages:
    3,493
    Likes:
    3,968
    Midwest USA
    He might have meant colchicine???

    Ema
     
  5. Butydoc

    Butydoc President

    Messages:
    112
    Likes:
    348
    Thanks Ema for correcting my spelling. The drug I'm on is colchicine. He recently increased my dosage from .6 mg to .9 mg/day.
    He told me if my progress becomes stagnant he would consider using a stronger drug, like methotrexate. He claims he is seeing a very strong cytokine inflammatory profile in cfs/me patients. He should be publishing his results soon.

    Gary
     
    heapsreal likes this.
  6. SOC

    SOC Senior Member

    Messages:
    5,364
    Likes:
    6,445
    USA
    I'm looking forward to that publication. I think all the docs who are actually doing cytokine testing are seeing the same thing. We need this info published and accepted.
     
  7. Butydoc

    Butydoc President

    Messages:
    112
    Likes:
    348
    Hi Jenny,
    Colchicine is an anti-inflammatory drug most commonly used in acute flair-ups of gout. The drug has been around for at least 50 years.

    Gary
     

See more popular forum discussions.

Share This Page