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Valcyte (plus) Update

Discussion in 'Antivirals, Antibiotics and Immune Modulators' started by SOC, Aug 4, 2010.

  1. heapsreal

    heapsreal iherb 10% discount code OPA989,

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  2. SOC

    SOC Senior Member

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    That is cheap. It more typically runs $25-$50 per pill (450mg). It's no wonder many people's insurance companies don't want to pay for more than 3 months (if that).

    Valcyte treatment (meds alone) can easily cost upwards of $50,000 (per person per year), so insurance that covers any part of that is a BIG plus. You just have to check with your insurance company to see what they'll cover. A bit of advice: you'll probably have better luck with the insurance company if your doc reports that it's for CMV or HHV6 infection rather than "CFS". It's not documented to be effective for "CFS", so most insurance companies are understandably unwilling to pay for such an expensive med without evidence of efficacy.
     
  3. mojoey

    mojoey Senior Member

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    Oh wow heapsreal. You probably just kept a few people on valcyte (once insurance runs out) Thank you so much for sharing!
     
  4. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    glad i can help, but still priced out of my league for the time being, unless someone wants to buy 2 kids from me, they dont each much, lol.
     
  5. AliceZ

    AliceZ

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    If you meet their income criteria and don't have insurance coverage for the prescriptions, you may be able to qualify for the medication for free or at a reduced price directly from the manufacturer. You and your doctor need to fill out a bunch of stuff and you have to test positive for the relevant viruses. You can probably get information on the relevant program over the internet.
     
  6. mojoey

    mojoey Senior Member

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    Haha yeah it's still not cheap by any means. The patent doesn't expire til 2015 but i'm keeping my fingers crossed for more international generics to get produced to increase competition and lower the price.
     
  7. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    i think its all different for us australians, prescription meds are quite cheap here as they are subsidized by the government but only for what they are indicated for. valcyte is only indicated for cmv eye infections in HIV and organ transplants. For us aussie we are probably going to have to wait for cfs/me to be recognised as an infection/immune disorder b and then we can probably get these meds for $33 a month until then valcyte in australia costs about $15k for 3 months at 900mg a day. to afford that we have to be either rich or able to work lots of overtime, so its only for the rich. Im going to have to look at higher doses of famvir and immune stimulants or win the lotto,lol.

    cheers!!!
     
  8. juzcat

    juzcat

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    Valcivir from India US$1 per 1000g Tab

    The generic form is available and made by Cipla in India
    Price is INR140 for 3 tables 1000mg
    That's about US$1 each!
    YOu can also get that without a prescripton
    I am luck enough to have friends there who got it for me
    I have not yet started the protocol
    Anyone got advice on how to start
    Cheers
     
  9. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    If u could share a web site for this would be appreciated.

    cheers!!!
     
  10. atoska

    atoska

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    that sounds great sickofcfs!!!! lucky daughter :) now a long life of health and happyness :)
     
  11. jstefl

    jstefl Senior Member

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    Valcivir is generic Valtrex, not Valcyte.
     
  12. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    Makes sense why its so cheap, i get excited when i see cheap valcyte. cheap valtrex u can get from 4rx.com
    one day i will try valcyte.
     
  13. redo

    redo Senior Member

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    Does the Xyrem help you August59? Makes you fall asleep and stay asleep better than ambien?
     
  14. undcvr

    undcvr Senior Member

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    Have you been looking into food intolerances/sensitivities ? I never tested positive for any but recently when I stopped eating wheat completely, my immune system jumped and i am able to reduce my dose of Valcyte by half. It is a very very big deal. I am thinking about doing the ALCAT test.

    Another suggestion is to drink bone marrow soup regularly, 2-3X a week. It helped to bring my WBC count up. It is much cheaper than SLO.
     
  15. undcvr

    undcvr Senior Member

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    Yes, its the same idea behind LDN too, it will help stimulate WBC production and in turn stimulate NKC activity.
     
  16. Vanguard

    Vanguard

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    Sickof - it's great to hear about you and you're daughter, you're an inspiration to me for sure.

    I have to ask, just because it's been bugging me for weeks - What is your avatar picture of? Haha

    Vanguard
     
  17. mellster

    mellster Marco

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    It looks to me it fits to the handle - looks like a big foot/paw is giving CFS a kick in the butt :)
     
  18. redo

    redo Senior Member

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    For how long did the worsening go on unti you got better? Days, weeks, months?
     
  19. mellster

    mellster Marco

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    Hey SOC, that's great continued progress - good to hear! One thing I'd really like to know is what your doc (Lerner) considers as having beat the infection into latency, i.e. what values specifically for HHV6. I know there are different measurements for different labs, but usually the dilution method is one of the most accurate, e..g IGG for HHV6 of 1:10 or less is considered never being infected or full recovery, but a lot of people who came in contact with it have slightly higher titers, e.g. can be detected at dilution levels of 1:20 or 1:40 or higher. Would be interesting to know at what IGG level Lerner would be satisfied and call it latent. Thx & cheers.
     
  20. undcvr

    undcvr Senior Member

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    I hv to agree with you SoCfs and that is to catch this condition really early early on. That is one of the surest ways of beating it. And when you do feel that you are coming down with something, drop everything and throw everything at it. Those were the days I felt like when I was taking 7-8 AVs/ARVs at the sametime.

    Pple who recover better on this site are the ones that are aggressive towards it. Back when I had no prescribed AVs to throw at it, I would take alots of immune-boosting supplements. They were helpful.
     

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