im coming up to a year on valcyte for cmv, its helped me out alot. At this stage it looks like i will be stopping at the end of march(12 months) but will continue with famvir and immunovir. next week i should get some test results back to see if my cd8 t cells have come down, this is the test my doc uses for viral activity for ebv/cmv, cant get titres done in australia. They have come down with famvir and valcyte, my last test showed they had come down but still above normal, so some activation still going on.
I have low nk function but could only get this test done in a research study i was in but nk numbers i get from my doctor and normally its in the low normal ever since i have tested it, so if its gone up i will use it as a guide that immunovir is also helping but not definative as nk function i would think can improve without numbers going up??
So depending on all these tests will dictate if i stop valcyte. To tell you the truth im pooping my pants about stopping this as the thought of a relapse is scary, but atleast i know valcyte works for me. There have been some cases of people improving more so once off valcyte too, i suppose we just dont know??
good luck.