Sorry - did miss that. I too am homebound. I "bottomed out" and was at the end of my rope.
Begged dr. to put me in hospital because I was so weak I couldn't stand it. I was so wiped out. On oxygen. I was pretty desperate so my husband agreed to take me. I was bedridden for years - but did make small gains when went to fibro doc & he ran blood tests & I found out what I was dealing with.
Traditional docs are pretty useless when it comes to treating these disorders. I eventually had to switch to a home-care service (some docs smart and re-instituting house calls but you have to search to find one) to get basic meds, but had to cancel many times when going to fibro doc. Just did not have enough energy to travel the 1 hr. ride.
If you get too bad, call 911 - my dr. called for me a few years ago when I couldn't breathe & they came to house and brought me to hospital in ambulance - so no energy output to drain from my empty tank. At least they'll send you home with some pain meds - not good for liver, but some cases necessary to survive.
Although - you still have to be careful in hospitals...lot of money crunches on entire workforce = rising hospital errors. That's why one doc told me there is such an explosion of fms/ cfids - stress, everybody working 2 jobs... those with money & political clout are out of touch with the realities of Joe & Jane Average.
Maybe you can look for a home-care service in your area. At least you might find a doc willing to work with you & prescribe you the meds - and Doc Pridgen will work with your dr. if you want to trial the Famvir protocol. I had suggested to Holtdorf that they do house-calls because the people they are dealing with are usually too sick to leave the house. They just forwarded it to doc who works with them - he is a good dr. - but wish he made house calls.
Maybe if we, as a group, petitiioned these holistic docs, they would agree to make house calls. It's such a hard road, that few understand, unless/ until they've been there. I hope you find the help - I know how bad this gets.
Anybody want to start a petition?