Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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UV intolerance?

Discussion in 'Hypersensitivity and Intolerance' started by douglasmich, Jan 27, 2016.

  1. douglasmich

    douglasmich

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    Since i got MCS i cannot tolerate the sun.

    I still go in the sun however because 6 hours after it i have profound mood effects.

    WHen i stand in the sun for 10-20min i come back inside and i feel extreme brain fog. I also have severe air hunger and feel like i will have a stroke !

    It lasts about an hour then goes away. Sometimes if i take some cayenne pepper it helps.

    ANy idea what the hell this is?
     
  2. Thinktank

    Thinktank Senior Member

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    Are you sure it's UV intolerance and not heat intolerance?
    Photosensitivity to UV exacerbates some auto-immune diseases like Lupus.
     
    L'engle likes this.
  3. douglasmich

    douglasmich

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    yes.

    I can be inside dying from heat but never have these symptoms.

    its only in UV raise. Very bad air hunger / brain fog. it feels like im breathing nothing. quite frightening
     
  4. ahmo

    ahmo Senior Member

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    Northcoast NSW, Australia
    From the moment I collapsed w/ ME, I had sun intolerance. It's one of the symptoms of pyroluria. When I supplemented for pyroluria, 5 days later the sun intolerance disappeared. I don't know if this is the same thing you're experiencing. I felt the sun as burning, with the least amount of contact. I also had air hunger, but do not if that was part of the same thing. Zinc, manganese, selenium, molybdenum, p5p were the things I added.

    http://www.hputest.nl/evraag.htm Online questionnaire to suspect pyroluria


    Short Version (36pg) Pyroluria/Lyme protocol. From Powerpoint doc used during Klinghardt presentation: Lyme Induced Autism

    http://www.lymeinducedautism.com/images/1_KlinghardtKPU_09_PX.pdf
     
  5. IreneF

    IreneF Senior Member

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    I've had the occasional sun allergy, but it's been hives or swelling and rash.
     
  6. Thinktank

    Thinktank Senior Member

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    Do you tolerate vitamin D? What is your vitamin D level?
     
  7. douglasmich

    douglasmich

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    Vitamin D was 190 (40-140) on 10,000 a day so i quit it
     

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