It has been really good to read about EDS and IH. I don't know anyone who has IH headaches and it has been a relief to come here and read about different treatments and so forth. The Intracranial Hypertension Research Organization has recommended diuretics as a possible solution too. I just went through 72 hours of back to back IH headaches but took the diuretic my doc supplied. I combined it with Tumeric since many people have had success with it helping with IH. The combined treatment reduced my pain and symptoms by about 60% at the least and 85% at it's max throughout the ordeal. True, that as CFIDS patients we often have reduced blood volume, but my doctor's solution was to take the diuretic only on IH days or days when I felt like they were coming on. Usually, I am either super thirsty or retaining water with that special pressure behind my eyes when one is coming on and am also much more prone to them during my period or the week before that. We are experimenting with diuretics as CFIDS and it's allergy prone self made this last diuretic a poor choice from a sensitivity standpoint (although it technically did it's job). By the way, before the diuretic, I took only Tumeric and it does help. The diuretic alone helps too. But together they are more successful, and the Tumeric can be taken all the time which is my next course of action. While taking the diuretic, I also made sure to wear pressure stockings for circulation and to keep my legs slightly elevated when sitting or laying down which is most of the time. I do salt but only with iodized salts or natural salts from the Himalayas. I take kelp for iodine too. Normally, I am a very hydrated person, so learning to go a little on the dehydrated side (not extreme) is a new experience. Does anyone have anyone solutions?