Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Using a wheelchair.

Discussion in 'General ME/CFS Discussion' started by Eve18, Feb 18, 2018.

  1. Eve18


    Are you using a wheelchair? At what point did you decide that is a time for a wheelchair? How hard emotionally was to make that decision? How your family reacted?
    I know that a wheelchair is just a tool but I have a hard time to accept that I need one.
    andyguitar likes this.
  2. taniaaust1

    taniaaust1 Senior Member

    Sth Australia
    Yes I use a wheelchair when taken out. I decided it was time for when when I started collapsing in the supermarket which causes a lot of drama. It was VERY HARD emotionally making that decison so things had got quite exteme before I did. It had got to the point where I literally couldnt do things without one.

    My family was completely fine about this.

    It is very hard accepting one has to use a wheelchair. I wish I'd had someone helping me come to terms with needing one way before things went how they did. My disability support agency was against me having one even when it got to the point where it had become essential. I had to get 3 different doctors backing I needed one before they paid any attention to that.
    andyguitar and justy like this.
  3. justy

    justy Donate Advocate Demonstrate

    I use a wheelchair all the time outside and sometimes inside. It took me two years of missing out on family days out etc before i decided to try one. I didnt find it hard emotionally - it was very liberating, but my family did.

    It took them quite a few years to get used to it - also husband having to push was hard at first.

    Ive just bought an electric wheelchair for going out - although my condition is worse these days and i dont go out often. But im trying to regain some Independence and dignity so bought an electric chair and getting my car fitted with a hoist so i can get it in and out also.
    taniaaust1, andyguitar and PatJ like this.
  4. RebeccaRe

    RebeccaRe Moose Enthusiast

    If you're missing out on things and using a wheelchair will allow you do to more, go for it! Using a wheelchair may make you look more disabled and that might make you feel more disabled. But appearances can be deceiving because using a wheelchair actually makes you much less disabled because you can go out and do more.
    Soup Dragon and andyguitar like this.
  5. andyguitar

    andyguitar Senior Member

    South east England
    Go for it @Eve18 Life could well become much,much better. And it might only be for a while anyway.
  6. Sundancer

    Sundancer Senior Member

    I've just bought me a wheelchair, my trip to the bank would have been nearly impossible without. I was so happy with it, I could concentrate on what the lady said, had no PEM afterwards and I was out, after months of being totally housebound.

    I plan on trying to get some sort of electrified wheelchair or scootmobile so that 'll be able to get out again by myself.

    It was hard for me to buy it, it felt like this is the end, it was an emotional hurdle. But it is not. I will go on trying to improve my health but ( as long as I can find someone to push) i have a possibility to go out now. So, it's not the end but a beginning

    added plus, the ladies who come over here for getting some blood off me, never wonder if I'm really ill anymore....;):rofl:

    just lovely
    andyguitar, Soup Dragon and RebeccaRe like this.

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